What is cystinuria?

Cystine is an amino acid that is normally filtered into the urine or reenters the bloodstream. People with cystinuria have a genetic defect that prevents this process from occurring. Cystinuria is a genetic disorder characterized as an increased amount cystine in the urine.

How do members experience cystinuria?

Top 5 symptoms reported by people with cystinuria*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cystinuria*

Who has cystinuria on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 5
30s 3
40s 3
50s 2
60s 3
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 6
Female 13