Complex regional pain syndrome type I

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What is complex regional pain syndrome type I?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. CRPS Type I, formerly known as reflex sympathetic dystrophy, Sudeck's atrophy, reflex neurovascular dystrophy or algoneurodystrophy, does not have nerve involvement.

Common symptoms reported by people with complex regional pain syndrome type I

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
9
Tried for
complex regional pain syndrome type I (9) pain (3)
1 more
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
3
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)
Treatment name(s)

(BuTrans patch)
Type
Prescription Drug
How many have tried
2

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type I (26 evaluations)
Side effects
dizziness brain fog 5 more
Total evaluations
28
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for complex regional pain syndrome type I (6 evaluations)
Side effects
buzzing electric sensation Hospitalization 1 more
Total evaluations
6
Tried for
complex regional pain syndrome type I (9) pain (3)
1 more
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
constipation
Total evaluations
10
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
cognitive confusion itchy skin
Total evaluations
2
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for complex regional pain syndrome type I (6 evaluations)
Side effects
stiffness in morning unrefreshing or poor sleep 1 more
Total evaluations
6
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
spacing out
Total evaluations
1
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
balance problems drowsiness
Total evaluations
1
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for complex regional pain syndrome type I (1 evaluation)
Side effects
sleepiness
Total evaluations
2
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
restlessness (akathisia)
Total evaluations
1
Tried for
fatigue (2)
Treatment name(s)

(BuTrans patch)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type I on PatientsLikeMe?

  • 0 new patients joined this month
  • 486 say CRPS type I is their primary condition

Age
Age Proportion # of patients
<20 7
20s 53
30s 82
40s 215
50s 224
60s 168
70+ 43
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 53
20-29 years 66
30-39 years 91
40-49 years 90
50-59 years 32
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 130
Female 666

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 402
Not Diagnosed 31

These charts show data from CRPS type I patients who have completed their condition history
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