Complex regional pain syndrome type I

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What is complex regional pain syndrome type I?

Complex regional pain syndrome (CRPS) is a chronic progressive disease characterized by severe pain, swelling and changes in the skin. CRPS Type I, formerly known as reflex sympathetic dystrophy, Sudeck's atrophy, reflex neurovascular dystrophy or algoneurodystrophy, does not have nerve involvement.

Common symptoms reported by people with complex regional pain syndrome type I

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
12
Tried for
complex regional pain syndrome type I (12) pain (6)
1 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (4) pain (2)
1 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
4
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
3
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with complex regional pain syndrome type I

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for complex regional pain syndrome type I (25 evaluations)
Side effects
dizziness brain fog 6 more
Total evaluations
28
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for complex regional pain syndrome type I (7 evaluations)
Side effects
Hospitalization muscle fatigue 3 more
Total evaluations
7
Tried for
complex regional pain syndrome type I (12) pain (6)
1 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for complex regional pain syndrome type I (2 evaluations)
Side effects
spacing out weight gain
Total evaluations
2
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (13 evaluations)
Side effects
constipation nausea
Total evaluations
14
Tried for
depressed mood (4) pain (2)
1 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for complex regional pain syndrome type I (7 evaluations)
Side effects
stiffness in morning unrefreshing or poor sleep 1 more
Total evaluations
7
Treatment name(s)

(Elavil)
Perceived effectiveness
for complex regional pain syndrome type I (2 evaluations)
Side effects
balance problems drowsiness 1 more
Total evaluations
2
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
cognitive confusion itchy skin
Total evaluations
2
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for complex regional pain syndrome type I (2 evaluations)
Side effects
Total evaluations
2
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
dizziness forgetfulness 3 more
Total evaluations
3
Tried for
anxious mood (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with complex regional pain syndrome type I, who reported starting treatments within the last 5 years.
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Who has complex regional pain syndrome type I on PatientsLikeMe?


Age
Age Proportion # of patients
<20 9
20s 52
30s 94
40s 206
50s 208
60s 144
70+ 32
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 52
20-29 years 66
30-39 years 87
40-49 years 88
50-59 years 31
60-69 years 7
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 118
Female 632

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 397
Not Diagnosed 30

These charts show data from CRPS type I patients who have completed their condition history
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