What is Crouzon syndrome?

Crouzon syndrome affects babies during early development, it is the early fusion (premature) of the skull bones. This affects the shape of the head and face. As a result, it can affect hearing (misshapen ear canals) and the teeth (misshaped jaw).

How do members experience Crouzon syndrome?

Top 5 symptoms reported by people with Crouzon syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Crouzon syndrome*

Who has Crouzon syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 2
30s 1
40s 1
50s 0
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 4
Female 2