Creutzfeldt-Jakob disease
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Creutzfeldt-Jakob disease?
Creutzfeldt-Jakob disease is a rare transmittable degenerative disorder of the brain characterized by progressive dementia and motor dysfunction. Variant Creutzfeldt-Jakob disease (vCJD) is a type that is most common in the United Kingdom.
Common symptoms reported by people with Creutzfeldt-Jakob disease
Treatments taken by people with Creutzfeldt-Jakob disease
Let’s build this page together! When you share what it’s like to have Creutzfeldt-Jakob disease through your profile, those stories and data appear here too.
Got a question about living with Creutzfeldt-Jakob disease? Members in the forum might have the answers.
Compare treatments taken by people with Creutzfeldt-Jakob disease
Let’s build this page together! When you share what it’s like to have Creutzfeldt-Jakob disease through your profile, those stories and data appear here too.
Got a question about living with Creutzfeldt-Jakob disease? Members in the forum might have the answers.
Who has Creutzfeldt-Jakob disease on PatientsLikeMe?
- 0 new patients joined this month
- 5 say Creutzfeldt-Jakob disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 0 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 1 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 0 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Creutzfeldt-Jakob disease through your profile, those stories and data appear here too.
Got a question about living with Creutzfeldt-Jakob disease? Members in the forum might have the answers.