What is craniosynostosis?
Craniosynostosis is characterized as the premature closure of the skull bones before the brain is fully developed. With craniosynostosis the brain can not grow appropriately and the head forms in an abnormal shape.
How do members experience craniosynostosis?
Top 5 symptoms reported by people with craniosynostosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for craniosynostosis*
Who has craniosynostosis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 5 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 5 |