Craniosynostosis
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What is craniosynostosis?
Craniosynostosis is characterized as the premature closure of the skull bones before the brain is fully developed. With craniosynostosis the brain can not grow appropriately and the head forms in an abnormal shape.
Common symptoms reported by people with craniosynostosis
Treatments taken by people with craniosynostosis
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Got a question about living with craniosynostosis? Members in the forum might have the answers.
Compare treatments taken by people with craniosynostosis
Let’s build this page together! When you share what it’s like to have craniosynostosis through your profile, those stories and data appear here too.
Got a question about living with craniosynostosis? Members in the forum might have the answers.
Who has craniosynostosis on PatientsLikeMe?
- 6 patients have this condition
- 0 new patients joined this month
- 5 say craniosynostosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 3 | |
| 40s | 2 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 4 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have craniosynostosis through your profile, those stories and data appear here too.
Got a question about living with craniosynostosis? Members in the forum might have the answers.