Cold agglutinin disease
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What is cold agglutinin disease?
Cold agglutinin disease is a rare, autoimmune condition in which molecules, called IgM antibodies, attack the body's red blood cells. This causes the red blood cells to die prematurely. This condition is a type of hemolytic autoimmune anemia.
Common symptoms reported by people with cold agglutinin disease
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with cold agglutinin disease
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with cold agglutinin disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with cold agglutinin disease
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with cold agglutinin disease, who reported starting treatments within the last 5 years.
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Who has cold agglutinin disease on PatientsLikeMe?
- 23 patients have this condition
- 1 new patients joined this month
- 18 say cold agglutinin disease is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 2 | |
| 50s | 6 | |
| 60s | 3 | |
| 70+ | 7 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 0 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 1 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 5 | |
| Female | 16 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 3 | |
| Not Diagnosed | 0 |
These charts show data from cold agglutinin disease patients who have completed their condition history
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