What is cold agglutinin disease?

Cold agglutinin disease is a rare, autoimmune condition in which molecules, called IgM antibodies, attack the body's red blood cells. This causes the red blood cells to die prematurely. This condition is a type of hemolytic autoimmune anemia.

How do members experience cold agglutinin disease?

Top 5 symptoms reported by people with cold agglutinin disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for cold agglutinin disease*

Who has cold agglutinin disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 4
50s 5
60s 10
70+ 17

Distribution of sex

Sex

Sex Proportion # of patients
Male 9
Female 30

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What is cold agglutinin disease?

Cold agglutinin disease is a rare, autoimmune condition in which molecules, called IgM antibodies, attack the body's red blood cells. This causes the red blood cells to die prematurely. This condition is a type of hemolytic autoimmune anemia.



Common symptoms reported by people with cold agglutinin disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for cold agglutinin disease

Let’s build this page together! When you share what it’s like to have cold agglutinin disease through your profile, those stories and data appear here too.

Got a question about living with cold agglutinin disease? Members in the forum might have the answers.


Compare treatments taken by people with cold agglutinin disease

Let’s build this page together! When you share what it’s like to have cold agglutinin disease through your profile, those stories and data appear here too.

Got a question about living with cold agglutinin disease? Members in the forum might have the answers.



Who has cold agglutinin disease on PatientsLikeMe?

  • 0 new patients joined this month
  • 33 say cold agglutinin disease is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 2
40s 4
50s 5
60s 10
70+ 17
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 9
Female 30

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3
Not Diagnosed 0

These charts show data from cold agglutinin disease patients who have completed their condition history
Last updated: