What is Chromosome 1p36 Deletion?

1p36 Deletion syndrome is a chromosome disorder that is characterized by moderate to severe intellectual disability, brain abnormalities, delayed growth, limited speech ability, distinct facial features, seizures, and congenital heart defects.

How do members experience Chromosome 1p36 Deletion?

Top 5 symptoms reported by people with Chromosome 1p36 Deletion*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Chromosome 1p36 Deletion*

Who has Chromosome 1p36 Deletion on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 0
30s 0
40s 1
50s 1
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 1
Female 4

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What is Chromosome 1p36 Deletion?

1p36 Deletion syndrome is a chromosome disorder that is characterized by moderate to severe intellectual disability, brain abnormalities, delayed growth, limited speech ability, distinct facial features, seizures, and congenital heart defects.



Common symptoms reported by people with Chromosome 1p36 Deletion

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Chromosome 1p36 Deletion

Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.

Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.


Compare treatments taken by people with Chromosome 1p36 Deletion

Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.

Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.



Who has Chromosome 1p36 Deletion on PatientsLikeMe?

  • 0 new patients joined this month
  • 5 say Chromosome 1p36 Deletion is their primary condition

Age
Age Proportion # of patients
<20 2
20s 0
30s 0
40s 1
50s 1
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 1
Female 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1
Not Diagnosed 0

These charts show data from Chromosome 1p36 Deletion patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.

Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.