Chromosome 1p36 Deletion
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Chromosome 1p36 Deletion?
1p36 Deletion syndrome is a chromosome disorder that is characterized by moderate to severe intellectual disability, brain abnormalities, delayed growth, limited speech ability, distinct facial features, seizures, and congenital heart defects.
Common symptoms reported by people with Chromosome 1p36 Deletion
Treatments taken by people with Chromosome 1p36 Deletion
Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.
Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.
Compare treatments taken by people with Chromosome 1p36 Deletion
Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.
Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.
Who has Chromosome 1p36 Deletion on PatientsLikeMe?
- 0 new patients joined this month
- 3 say Chromosome 1p36 Deletion is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 3 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Chromosome 1p36 Deletion through your profile, those stories and data appear here too.
Got a question about living with Chromosome 1p36 Deletion? Members in the forum might have the answers.