What is chromosome 11p deletion syndrome?

Chromosome 11p deletion/WAGR syndrome is associated with a group of conditions: Wilms' Tumor (kidney cancer), aniridia (discoloration of the eye), genitourinary problems, and mental retardation. Most patients will have at least two or more of the listed conditions.

How do members experience chromosome 11p deletion syndrome?

Top 5 symptoms reported by people with chromosome 11p deletion syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for chromosome 11p deletion syndrome*

Who has chromosome 11p deletion syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 0
Female 1

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chromosome 11p deletion syndrome?

Chromosome 11p deletion/WAGR syndrome is associated with a group of conditions: Wilms' Tumor (kidney cancer), aniridia (discoloration of the eye), genitourinary problems, and mental retardation. Most patients will have at least two or more of the listed conditions.



Common symptoms reported by people with chromosome 11p deletion syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for chromosome 11p deletion syndrome

Let’s build this page together! When you share what it’s like to have chromosome 11p deletion syndrome through your profile, those stories and data appear here too.

Got a question about living with chromosome 11p deletion syndrome? Members in the forum might have the answers.


Compare treatments taken by people with chromosome 11p deletion syndrome

Let’s build this page together! When you share what it’s like to have chromosome 11p deletion syndrome through your profile, those stories and data appear here too.

Got a question about living with chromosome 11p deletion syndrome? Members in the forum might have the answers.



Who has chromosome 11p deletion syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 1 say chromosome 11p deletion syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 0
60s 0
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 0
Female 1

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 0
Not Diagnosed 0

These charts show data from chromosome 11p deletion syndrome patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have chromosome 11p deletion syndrome through your profile, those stories and data appear here too.

Got a question about living with chromosome 11p deletion syndrome? Members in the forum might have the answers.