What is cerebrospinal fluid leak?
A cerebrospinal fluid leak is a condition when the fluid contained in the spinal column and brain leaks out of its confined space. This can be caused by several reasons, including spontaneous cerebrospinal fluid leak, following a procedure such as a spinal tap (lumbar puncture) or trauma.
How do members experience cerebrospinal fluid leak?
Top 5 symptoms reported by people with cerebrospinal fluid leak*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain in back of neck and shoulders
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Hearing problems
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pulsating tinnitis
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Orthostatic headaches
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for cerebrospinal fluid leak*
Who has cerebrospinal fluid leak on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 12 | |
| 30s | 13 | |
| 40s | 18 | |
| 50s | 40 | |
| 60s | 33 | |
| 70+ | 17 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 31 | |
| Female | 103 |