Cerebrospinal fluid leak

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What is cerebrospinal fluid leak?

A cerebrospinal fluid leak is a condition when the fluid contained in the spinal column and brain leaks out of its confined space. This can be caused by several reasons, including spontaneous cerebrospinal fluid leak, following a procedure such as a spinal tap (lumbar puncture) or trauma.

Common symptoms reported by people with cerebrospinal fluid leak

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with cerebrospinal fluid leak

Treatment name(s)
Type
How many have tried
Tried for
Type
Surgery
How many have tried
3
Tried for
cerebrospinal fluid leak (3)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
cerebrospinal fluid leak (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Voltaren)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lamictal)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Vitamin B12 Prescription (cyanocobalamin))
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with cerebrospinal fluid leak, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with cerebrospinal fluid leak

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for cerebrospinal fluid leak (1 evaluation)
Side effects
Total evaluations
1
Tried for
cerebrospinal fluid leak (3)
Treatment name(s)

(Abilify)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
for cerebrospinal fluid leak (1 evaluation)
Side effects
sore back
Total evaluations
1
Tried for
cerebrospinal fluid leak (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Voltaren)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lamictal)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
deadened emotions
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(Ritalin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Vitamin B12 Prescription (cyanocobalamin))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with cerebrospinal fluid leak, who reported starting treatments within the last 5 years.
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Who has cerebrospinal fluid leak on PatientsLikeMe?

  • 1 new patients joined this month
  • 66 say cerebrospinal fluid leak is their primary condition

Age
Age Proportion # of patients
<20 3
20s 5
30s 10
40s 26
50s 28
60s 23
70+ 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 24
Female 80

These charts show data from cerebrospinal fluid leak patients who have completed their condition history
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