Carney complex
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What is Carney complex?
Carney Complex is a developmental autosomal dominant disorder characterized by spotty skin pigmentation, cardiac and other myxomas (primary tumor of the heart), endocrine tumors, psammomatous melanotic schwannomas and other tumors.
Common symptoms reported by people with Carney complex
Treatments taken by people with Carney complex
Let’s build this page together! When you share what it’s like to have Carney complex through your profile, those stories and data appear here too.
Got a question about living with Carney complex? Members in the forum might have the answers.
Compare treatments taken by people with Carney complex
Let’s build this page together! When you share what it’s like to have Carney complex through your profile, those stories and data appear here too.
Got a question about living with Carney complex? Members in the forum might have the answers.
Who has Carney complex on PatientsLikeMe?
- 11 patients have this condition
- 0 new patients joined this month
- 7 say Carney complex is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 3 | |
| 40s | 0 | |
| 50s | 4 | |
| 60s | 0 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 8 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 4 | |
| Not Diagnosed | 0 |