What is Carney complex?

Carney Complex is a developmental autosomal dominant disorder characterized by spotty skin pigmentation, cardiac and other myxomas (primary tumor of the heart), endocrine tumors, psammomatous melanotic schwannomas and other tumors.

How do members experience Carney complex?

Top 5 symptoms reported by people with Carney complex*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Carney complex*

Who has Carney complex on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 4
40s 0
50s 1
60s 3
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 2
Female 8

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What is Carney complex?

Carney Complex is a developmental autosomal dominant disorder characterized by spotty skin pigmentation, cardiac and other myxomas (primary tumor of the heart), endocrine tumors, psammomatous melanotic schwannomas and other tumors.



Common symptoms reported by people with Carney complex

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:



Treatments taken by people for Carney complex

Let’s build this page together! When you share what it’s like to have Carney complex through your profile, those stories and data appear here too.

Got a question about living with Carney complex? Members in the forum might have the answers.


Compare treatments taken by people with Carney complex

Let’s build this page together! When you share what it’s like to have Carney complex through your profile, those stories and data appear here too.

Got a question about living with Carney complex? Members in the forum might have the answers.



Who has Carney complex on PatientsLikeMe?

  • 0 new patients joined this month
  • 6 say Carney complex is their primary condition

Age
Age Proportion # of patients
<20 0
20s 0
30s 4
40s 0
50s 1
60s 3
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 1
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 2
Female 8

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 4
Not Diagnosed 0

These charts show data from Carney complex patients who have completed their condition history
Last updated: