What is cardiofaciocutaneous syndrome?
Cardio-facio-cutaneous (CFC) syndrome is a rare genetic condition affecting primarily the heart, facial features, and skin and hair. CFC occurs due to a gene mutation. Although there is no cure, there are multiple interventions available to improve the lives of individuals with CFC.
How do members experience cardiofaciocutaneous syndrome?
Top 5 symptoms reported by people with cardiofaciocutaneous syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for cardiofaciocutaneous syndrome*
Who has cardiofaciocutaneous syndrome on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 1 | |
20s | 0 | |
30s | 0 | |
40s | 0 | |
50s | 2 | |
60s | 1 | |
70+ | 1 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 2 | |
Female | 3 |