What is bladder exstrophy?
Bladder exstrophy occurs when a child is born with their bladder outside of the body, protruding from the abdominal wall. The bladder and supporting structures themselves are also not properly formed. This can be repaired with surgery.
How do members experience bladder exstrophy?
Top 5 symptoms reported by people with bladder exstrophy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for bladder exstrophy*
Who has bladder exstrophy on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 3 | |
| 30s | 6 | |
| 40s | 3 | |
| 50s | 2 | |
| 60s | 4 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 14 | |
| Female | 6 |