Autoimmune polyglandular syndrome type 1
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is autoimmune polyglandular syndrome type 1?
Autoimmune Polyglandular Syndrome Type 1 is an inherited condition that affects many of the body's organs. It is characterized by three features; individuals have at least two of these features: mucocutaneous candidiasis, hypoparathyroidism, and Addison's disease.
Common symptoms reported by people with autoimmune polyglandular syndrome type 1
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with autoimmune polyglandular syndrome type 1
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with autoimmune polyglandular syndrome type 1, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with autoimmune polyglandular syndrome type 1
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with autoimmune polyglandular syndrome type 1, who reported starting treatments within the last 5 years.
Last updated:
Who has autoimmune polyglandular syndrome type 1 on PatientsLikeMe?
- 15 patients have this condition
- 0 new patients joined this month
- 11 say autoimmune polyglandular syndrome type 1 is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 2 | |
| 30s | 3 | |
| 40s | 2 | |
| 50s | 1 | |
| 60s | 3 | |
| 70+ | 1 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 3 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 11 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6 | |
| Not Diagnosed | 0 |
These charts show data from autoimmune polyglandular syndrome type 1 patients who have completed their condition history
Last updated: