Amlyoidosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is amlyoidosis?
Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Generally, primary amyloidosis affects nerves, skin, tongue, joints, heart and liver; secondary amyloidosis often affects the spleen, kidneys, liver and adrenal glands.
Common symptoms reported by people with amlyoidosis
Treatments taken by people for amlyoidosis
Let’s build this page together! When you share what it’s like to have amlyoidosis through your profile, those stories and data appear here too.
Got a question about living with amlyoidosis? Members in the forum might have the answers.
Compare treatments taken by people with amlyoidosis
Let’s build this page together! When you share what it’s like to have amlyoidosis through your profile, those stories and data appear here too.
Got a question about living with amlyoidosis? Members in the forum might have the answers.
Who has amlyoidosis on PatientsLikeMe?
- 1 new patients joined this month
- 64 say amlyoidosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 3 | |
| 30s | 1 | |
| 40s | 4 | |
| 50s | 13 | |
| 60s | 27 | |
| 70+ | 31 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 2 | |
| 40-49 years | 5 | |
| 50-59 years | 9 | |
| 60-69 years | 7 | |
| 70+ years | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 37 | |
| Female | 45 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 32 | |
| Not Diagnosed | 2 |