Amlyoidosis
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- help each other live better and uncover the best ways to manage your health today
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What is amlyoidosis?
Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Generally, primary amyloidosis affects nerves, skin, tongue, joints, heart and liver; secondary amyloidosis often affects the spleen, kidneys, liver and adrenal glands.
Common symptoms reported by people with amlyoidosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with amlyoidosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with amlyoidosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with amlyoidosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for amlyoidosis (1 evaluation)
Total evaluations
1
Tried for
amlyoidosis
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
amlyoidosis
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with amlyoidosis, who reported starting treatments within the last 5 years.
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Who has amlyoidosis on PatientsLikeMe?
- 76 patients have this condition
- 1 new patients joined this month
- 50 say amlyoidosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 3 | |
| 50s | 21 | |
| 60s | 24 | |
| 70+ | 17 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 2 | |
| 40-49 years | 4 | |
| 50-59 years | 9 | |
| 60-69 years | 7 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 31 | |
| Female | 36 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 31 | |
| Not Diagnosed | 1 |
These charts show data from amlyoidosis patients who have completed their condition history
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