Amlyoidosis

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What is amlyoidosis?

Amyloidosis is a group of diseases in which protein is deposited locally in specific organs or throughout the body. Generally, primary amyloidosis affects nerves, skin, tongue, joints, heart and liver; secondary amyloidosis often affects the spleen, kidneys, liver and adrenal glands.

Common symptoms reported by people with amlyoidosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for amlyoidosis

Let’s build this page together! When you share what it’s like to have amlyoidosis through your profile, those stories and data appear here too.

Got a question about living with amlyoidosis? Members in the forum might have the answers.

Compare treatments taken by people with amlyoidosis

Let’s build this page together! When you share what it’s like to have amlyoidosis through your profile, those stories and data appear here too.

Got a question about living with amlyoidosis? Members in the forum might have the answers.

Who has amlyoidosis on PatientsLikeMe?

  • 1 new patients joined this month
  • 64 say amlyoidosis is their primary condition

Age
Age Proportion # of patients
<20 0
20s 3
30s 1
40s 4
50s 13
60s 27
70+ 31
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 2
40-49 years 5
50-59 years 9
60-69 years 7
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 37
Female 45

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 32
Not Diagnosed 2

These charts show data from amlyoidosis patients who have completed their condition history
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