What is Alstrom syndrome?

Alström syndrome is characterized as a gene mutation of the ALMS1 gene. The condition affects multiple functions of the body including hearing, vision, heart disease, liver function, and the endocrine system.

How do members experience Alstrom syndrome?

Top 5 symptoms reported by people with Alstrom syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Alstrom syndrome*

Who has Alstrom syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 0
30s 1
40s 2
50s 1
60s 0
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 2