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Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.
How do members experience Alagille syndrome?
Top 5 symptoms reported by people with Alagille syndrome*
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Alagille syndrome*
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Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.
Common symptoms reported by people with Alagille syndrome
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for Alagille syndrome
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Alagille syndrome
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.
Who has Alagille syndrome on PatientsLikeMe?
0
new patients joined this month
7
say Alagille syndrome is their primary condition