Alagille syndrome
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Alagille syndrome?
Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.
Common symptoms reported by people with Alagille syndrome
Treatments taken by people with Alagille syndrome
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.
Compare treatments taken by people with Alagille syndrome
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.
Who has Alagille syndrome on PatientsLikeMe?
- 0 new patients joined this month
- 4 say Alagille syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 2 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.