Alagille syndrome
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What is Alagille syndrome?
Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.
Common symptoms reported by people with Alagille syndrome
Treatments taken by people with Alagille syndrome
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Compare treatments taken by people with Alagille syndrome
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Got a question about living with Alagille syndrome? Members in the forum might have the answers.
Who has Alagille syndrome on PatientsLikeMe?
- 6 patients have this condition
- 0 new patients joined this month
- 4 say Alagille syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 3 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 1 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 2 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 2 | |
| Not Diagnosed | 0 |
Let’s build this page together! When you share what it’s like to have Alagille syndrome through your profile, those stories and data appear here too.
Got a question about living with Alagille syndrome? Members in the forum might have the answers.