What is Alagille syndrome?
Alagille syndrome is a genetic disorder that affects the liver, heart, kidney, and other systems of the body. A major feature is liver damage caused by abnormalities in the bile ducts. It is also associated with several heart problems, including impaired blood flow from the heart into the lungs.
How do members experience Alagille syndrome?
Top 5 symptoms reported by people with Alagille syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Alagille syndrome*
Who has Alagille syndrome on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 2 | |
20s | 2 | |
30s | 0 | |
40s | 2 | |
50s | 0 | |
60s | 1 | |
70+ | 0 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 3 | |
Female | 4 |