What is Aicardi-Goutieres syndrome?
Aicardi-Goutieres Syndrome (AGS) is a rare genetic disorder that mainly affects the brain, immune system, and skin. Individuals with AGS usually show signs and symptoms within the first six months of life. Common characteristics include small head, feeding difficulties, spasticity and dystonia.
How do members experience Aicardi-Goutieres syndrome?
Top 5 symptoms reported by people with Aicardi-Goutieres syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Aicardi-Goutieres syndrome*
Who has Aicardi-Goutieres syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 0 | |
| 30s | 0 | |
| 40s | 2 | |
| 50s | 6 | |
| 60s | 1 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 8 | |
| Female | 2 |