Adenomyosis
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is adenomyosis?
Adenomyosis is the uterine thickening that occurs when endometrial tissue, which normally lines the uterus, grows into the outer muscular walls of the uterus. Some women may have no symptoms and others may experience pain in the pelvic area.
Common symptoms reported by people with adenomyosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with adenomyosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with adenomyosis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with adenomyosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (3 evaluations)
Side effects
drowsiness
excessive dry mouth
Total evaluations
2
Tried for
pain
(3)
Perceived effectiveness
for adenomyosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
adenomyosis
(3)
pain
(1)
Perceived effectiveness
for depressed mood (1 evaluation)
Total evaluations
2
Tried for
depressed mood
(2)
pain
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue
(1)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
irregular menstrual periods
mood swings
Total evaluations
3
Tried for
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with adenomyosis, who reported starting treatments within the last 5 years.
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Who has adenomyosis on PatientsLikeMe?
- 204 patients have this condition
- 2 new patients joined this month
- 51 say adenomyosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 9 | |
| 30s | 34 | |
| 40s | 87 | |
| 50s | 28 | |
| 60s | 7 | |
| 70+ | 4 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 18 | |
| 20-29 years | 24 | |
| 30-39 years | 41 | |
| 40-49 years | 16 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 170 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 117 | |
| Not Diagnosed | 0 |
These charts show data from adenomyosis patients who have completed their condition history
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