Inclusion Body Myositis

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What is Inclusion Body Myositis?

Inclusion body myositis (IBM) is an inflammatory muscle disease, characterized by slowly progressive weakness and wasting of muscles, most apparent in the muscles of the arms and legs. There are two types sporadic inclusion body myositis (sIBM) and hereditary inclusion body myopathy (hIBM).

What is it like to have Inclusion Body Myositis?

Common symptoms How bad it is What people are taking for it
Nothing reported yet
Nothing reported yet
Nothing reported yet
Vitamin B12 (methylcobalamin)
Nothing reported yet

What do patients take to treat Inclusion Body Myositis and its symptoms?


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Who has Inclusion Body Myositis on PatientsLikeMe?

  • 31 patients have this condition
  • 0 new patients joined this month
  • 25 say Inclusion Body Myositis is their primary condition

Age Proportion # of patients
<20 0
20s 1
30s 0
40s 1
50s 8
60s 11
70+ 7


Distribution of females vs. males

56% Females
44% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 3
40-49 years 2
50-59 years 6
60-69 years 4
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 18
Not Diagnosed 1

These charts show data from Inclusion Body Myositis patients who have completed their condition history
Last updated: