Inclusion Body Myositis

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What is Inclusion Body Myositis?

Inclusion body myositis (IBM) is an inflammatory muscle disease, characterized by slowly progressive weakness and wasting of muscles, most apparent in the muscles of the arms and legs. There are two types sporadic inclusion body myositis (sIBM) and hereditary inclusion body myopathy (hIBM).

Common symptoms reported by people with Inclusion Body Myositis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Inclusion Body Myositis

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
1
Tried for
Inclusion Body Myositis (1)
Check to add this treatment to your profile
Treatment name(s)

(Jarrow B12 Lozenges)
Type
Supplement
How many have tried
1
Tried for
Fatigue (1)

Data from patients with Inclusion Body Myositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Inclusion Body Myositis

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Pamelor)
Perceived effectiveness
for Pain (1 evaluation)
Side effects
Sleepiness
How many evaluations
1
Tried for
Pain (1)
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Inclusion Body Myositis (1 evaluation)
Side effects
Brain fog Elevated blood pressure 1 more
How many evaluations
1
Tried for
Inclusion Body Myositis (1)
Check to add this treatment to your profile
Treatment name(s)

(Jarrow B12 Lozenges)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Fatigue (1)

Data from patients with Inclusion Body Myositis, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Inclusion Body Myositis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 1
30s 0
40s 0
50s 8
60s 18
70+ 15

Sex

Distribution of sex

63% Female
37% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 3
40-49 years 4
50-59 years 9
60-69 years 5
70+ years 2

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 26
Not Diagnosed 1

These charts show data from Inclusion Body Myositis patients who have completed their condition history
Last updated: