HIV exposure

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is HIV exposure?

HIV (human immunodeficiency virus) is a viral infection which can lead to acquired immunodeficiency syndrome (AIDS). HIV exposure may lead to HIV infection if not treated properly usually with PrEP and/or PEP.

Common symptoms reported by people with HIV exposure

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with HIV exposure

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Truvada)
Type
Prescription Drug
How many have tried
2
Tried for
HIV exposure (2)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Dexedrine)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Voltaren Gel)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Tivicay)
Type
Prescription Drug
How many have tried
1
Tried for
HIV exposure (1)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)

(Descovy)
Type
Prescription Drug
How many have tried
1
Tried for
HIV exposure (1)
Treatment name(s)

(Advil)
Type
Over the Counter Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Vyvanse)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(Methadose)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with HIV exposure, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with HIV exposure

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Truvada)
Perceived effectiveness
for HIV exposure (2 evaluations)
Side effects
abdominal pain headaches 1 more
Total evaluations
2
Tried for
HIV exposure (2)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
anxious mood insomnia 4 more
Total evaluations
2
Tried for
depressed mood (1)
Treatment name(s)

(Dexedrine)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
anticipatory anxiety chills 6 more
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Voltaren Gel)
Perceived effectiveness
for pain (1 evaluation)
Side effects
stomach pain
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Tivicay)
Perceived effectiveness
for HIV exposure (1 evaluation)
Side effects
Total evaluations
1
Tried for
HIV exposure (1)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
constipation decreased sex drive (libido) 6 more
Total evaluations
3
Tried for
depressed mood (1)
Treatment name(s)

(Descovy)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
HIV exposure (1)
Treatment name(s)

(Advil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Vyvanse)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1) fatigue (1)
Treatment name(s)

(Methadose)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with HIV exposure, who reported starting treatments within the last 5 years.
Last updated:

Who has HIV exposure on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 0
30s 2
40s 1
50s 2
60s 1
70+ 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 4
Female 2

These charts show data from HIV exposure patients who have completed their condition history
Last updated:

Let’s build this page together! When you share what it’s like to have HIV exposure through your profile, those stories and data appear here too.

Got a question about living with HIV exposure? Members in the forum might have the answers.