Obsessive-compulsive disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is obsessive-compulsive disorder?

Obsessive compulsive disorder (OCD) is an anxiety disorder characterized by recurrent, persistent obsessions or compulsions. Obsessions are the intrusive ideas, thoughts, or images and compulsions are repetitive and seemingly purposeful behavior generally recognized as senseless.

Common symptoms reported by people with obsessive-compulsive disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with obsessive-compulsive disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
37
Tried for
anxious mood (35) obsessive-compulsive disorder (3)
1 more
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
37
Tried for
obsessive-compulsive disorder (24) depressed mood (20)
1 more
Treatment name(s)

(Talk therapy)
Type
Psychotherapy
How many have tried
31
Tried for
obsessive-compulsive disorder (31) anxious mood (2)
2 more
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
31
Tried for
obsessive-compulsive disorder (18) depressed mood (17)
2 more
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
28
Tried for
depressed mood (14) anxious mood (12)
1 more
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
25
Tried for
anxious mood (24) depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
24
Tried for
depressed mood (15) obsessive-compulsive disorder (7)
2 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
23
Tried for
pain (16) anxious mood (6)
1 more
Treatment name(s)

(Luvox)
Type
Prescription Drug
How many have tried
19
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
18
Tried for
depressed mood (13) obsessive-compulsive disorder (5)
2 more

Data from patients with obsessive-compulsive disorder, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with obsessive-compulsive disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (20 evaluations)
Side effects
bipolar depressive episodes crying 12 more
Total evaluations
24
Tried for
anxious mood (35) obsessive-compulsive disorder (3)
1 more
Treatment name(s)

(Prozac)
Perceived effectiveness
for obsessive-compulsive disorder (16 evaluations)
Side effects
decreased appetite nervousness 12 more
Total evaluations
27
Tried for
obsessive-compulsive disorder (24) depressed mood (20)
1 more
Treatment name(s)

(Talk therapy)
Perceived effectiveness
for obsessive-compulsive disorder (18 evaluations)
Side effects
depressed mood dissociation 5 more
Total evaluations
23
Tried for
obsessive-compulsive disorder (31) anxious mood (2)
2 more
Treatment name(s)

(Zoloft)
Perceived effectiveness
for obsessive-compulsive disorder (9 evaluations)
Side effects
apathy constipation 11 more
Total evaluations
22
Tried for
obsessive-compulsive disorder (18) depressed mood (17)
2 more
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
anxious mood apathy 16 more
Total evaluations
14
Tried for
depressed mood (14) anxious mood (12)
1 more
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (14 evaluations)
Side effects
drowsiness dry mouth 2 more
Total evaluations
15
Tried for
anxious mood (24) depressed mood (1)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (12 evaluations)
Side effects
bipolar I disorder decreased appetite 3 more
Total evaluations
14
Tried for
depressed mood (15) obsessive-compulsive disorder (7)
2 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (7 evaluations)
Side effects
burning sensation in mouth excessive appetite 2 more
Total evaluations
10
Tried for
pain (16) anxious mood (6)
1 more
Treatment name(s)

(Luvox)
Perceived effectiveness
for obsessive-compulsive disorder (9 evaluations)
Side effects
anxious mood brain fog 7 more
Total evaluations
9
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
blurry vision dizziness 31 more
Total evaluations
14
Tried for
depressed mood (13) obsessive-compulsive disorder (5)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with obsessive-compulsive disorder, who reported starting treatments within the last 5 years.
Last updated:

Who has obsessive-compulsive disorder on PatientsLikeMe?


Age
Age Proportion # of patients
<20 49
20s 705
30s 1,269
40s 1,152
50s 819
60s 352
70+ 93
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1,186
20-29 years 311
30-39 years 153
40-49 years 74
50-59 years 13
60-69 years 4
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 990
Female 3,459

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2,301
Not Diagnosed 1,809

These charts show data from OCD patients who have completed their condition history
Last updated: