Lymphangiomatosis
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is lymphangiomatosis?
Lymphangiomatosis is a condition of multiple tumors (lymphangiomas) or cysts that grow in the lymphatic system. The lymphatic system helps the body to fight off infection. These tumors can cause cause pain, difficulty breathing, and other symptoms based on the location of the tumor.
Common symptoms reported by people with lymphangiomatosis
Treatments taken by people for lymphangiomatosis
Let’s build this page together! When you share what it’s like to have lymphangiomatosis through your profile, those stories and data appear here too.
Got a question about living with lymphangiomatosis? Members in the forum might have the answers.
Compare treatments taken by people with lymphangiomatosis
Let’s build this page together! When you share what it’s like to have lymphangiomatosis through your profile, those stories and data appear here too.
Got a question about living with lymphangiomatosis? Members in the forum might have the answers.
Who has lymphangiomatosis on PatientsLikeMe?
- 0 new patients joined this month
- 19 say lymphangiomatosis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 7 | |
| 30s | 1 | |
| 40s | 5 | |
| 50s | 4 | |
| 60s | 4 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 5 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 8 | |
| Female | 15 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 5 | |
| Not Diagnosed | 0 |