Lymphangiomatosis

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What is lymphangiomatosis?

Lymphangiomatosis is a condition of multiple tumors (lymphangiomas) or cysts that grow in the lymphatic system. The lymphatic system helps the body to fight off infection. These tumors can cause cause pain, difficulty breathing, and other symptoms based on the location of the tumor.



Common symptoms reported by people with lymphangiomatosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for lymphangiomatosis

Let’s build this page together! When you share what it’s like to have lymphangiomatosis through your profile, those stories and data appear here too.

Got a question about living with lymphangiomatosis? Members in the forum might have the answers.


Compare treatments taken by people with lymphangiomatosis

Let’s build this page together! When you share what it’s like to have lymphangiomatosis through your profile, those stories and data appear here too.

Got a question about living with lymphangiomatosis? Members in the forum might have the answers.



Who has lymphangiomatosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 19 say lymphangiomatosis is their primary condition

Age
Age Proportion # of patients
<20 2
20s 7
30s 1
40s 5
50s 4
60s 4
70+ 0
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 0
30-39 years 0
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 8
Female 15

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 5
Not Diagnosed 0

These charts show data from lymphangiomatosis patients who have completed their condition history
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