What is Dravet's syndrome?

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare disorder caused by a genetic mutation in a protein that regulates electrical activity in the brain. People with SMEI experience almost every type of seizure known.

How do members experience Dravet's syndrome?

Top 5 symptoms reported by people with Dravet's syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Dravet's syndrome*

Who has Dravet's syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 10
20s 3
30s 4
40s 7
50s 9
60s 3
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 17
Female 23