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Our partners are committed to improving the lives of patients through their work. Each partnership enhances our community in different ways and adds to our unique ecosystem at PatientsLikeMe.

Nonprofits

Accelerated Cure Project

Accelerated Cure Project for Multiple Sclerosis is a national nonprofit organization dedicated to curing MS by determining its causes. This unique organization is driven by the philosophy that "curing means preventing the disability caused by MS, permanently stopping the progress of MS, and repairing the damage already caused in patients with MS."

Myelin Repair Foundation

The Myelin Repair Foundation (MRF) is the only non-profit medical research foundation solely focused on identifying myelin repair drug targets that will lead to treatments for multiple sclerosis.

National Kidney Foundation serving New England

The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.  The New England chapter serves those living in Massachusetts, New Hampshire, Vermont, and Rhode Island.

 

National MS Society, Central New England Chapter

For nearly 60 years, the Central New England Chapter has provided help for today, and hope for tomorrow to nearly 16,000 individuals and families affected by MS in Vermont, New Hampshire and Massachusetts.

Parkinson's Unity Walk

The Parkinson's Unity Walk (PUW), a grassroots organization, began in 1994 through the dedicated efforts of patients, families, support groups, and friends who were affected by Parkinson's disease. Their main goal is to raise awareness and funds for research to find a cure for Parkinson's. 

Research & Academia

Forbes-Norris Pacific ALS Centre

The Forbes Norris MDA/ALS Research Center has been at the forefront of neuromuscular disease research for over 25 years. The dedicated and experienced team of experts at the Forbes Norris Center
coordinates their efforts between patient care in our clinic, research studies, and creating a multifaceted resource for patients with ALS. In collaboration with PatientsLikeMe, Neuropsychologist Dr. Susan Woolley-Levine was able to validate the development of a brief carer-rated questionnaire to evaluate cognitive change amongst patients with ALS.

NEALS Northeast Amyotrophic Lateral Sclerosis Consortium

The Northeast ALS Consortium (NEALS), is an independent, non-profit consortium of clinical and scientific investigators who conduct ALS research at their affiliated institutions.  The mission of NEALS is to take advances in ALS research from the lab and translate them rapidly into new treatments for people with ALS.

Penn State Milton S. Hershey Medical Center

The ALS Clinic at Penn State Milton S. Hershey Medical Center is one of the leading research institutions in the field, particularly around issues of quality of life (QOL) for patients suffering from ALS. In collaboration with a research team lead by Dr. Zachary Simmons, PatientsLikeMe helped recruit more than 130 ALS patients to take part in a web-based survey of their healthcare experiences.  In particular, we were able to help researchers contact hard-to-reach patients who don't normally attend a specialist ALS clinic, helping to increase the representativeness of their sample.

The Pew Internet & American Life Project

The Pew Internet & American Life Project is one of seven projects that make up the Pew Research Center, a nonpartisan, nonprofit "fact tank" that provides information on the issues, attitudes and trends shaping America and the world. The Project produces reports exploring the impact of the internet on families, communities, work and home, daily life, education, health care, and civic and political life.

The Robert Packard Center for ALS Research at Johns Hopkins

The Packard Center for ALS Research at Johns Hopkins enables the world’s best ALS scientists to collaborate and access funding so that they may continue work to rapidly develop new treatments and find a cure for ALS, also known as Lou Gehrig’s disease. The hope is in the science.

The University of Wisconsin

The School of Library and Information Studies at the University of Wisconsin exists to educate professionals to bring together information in all its cultural forms and the people who need or want it, thereby contributing to individual and collective knowledge, productivity, and well-being. **Assistant Professor Catherine Arnott Smith, a medical informatics researcher specializing in medical vocabularies, analyzed the symptom descriptions generated by our patients and found that patient-generated symptom descriptions aligned closely with a number of professional medical vocabularies.**

Industry

23andMe

23andMe is dedicated to helping individuals understand their own genetic information using recent advances in DNA analysis technologies and web-based interactive tools. 23andMe enables individuals to gain deeper insights into their personal health, ancestry and inherited traits as well as giving them the opportunity to advance genetic research through participation in 23andMe’s research studies.

Avanir Pharmaceuticals

Avanir is a biopharmaceutical company focused on developing and commercializing novel therapies for central nervous system disorders with high unmet medical need.

Novartis Pharmaceuticals Corporation

Novartis Pharmaceuticals Corporation wants to improve patients' lives by providing customers with innovative science and differentiated healthcare solutions delivered by diverse and engaged talent with integrity, passion and focus on performance.

UCB

UCB, Brussels, Belgium (www.ucb.com) is a biopharmaceutical company dedicated to the research, development and commercialization of innovative medicines with a focus on the fields of central nervous system and immunology disorders. Employing more than 10 000 people in over 40 countries, UCB achieved revenues of 3.6 billion Euro in 2008. UCB is listed on Euronext Brussels (symbol: UCB).

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