PatientsLikeMe : Naltrexone Treatment Report

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Patients

Taking Naltrexone
165 Patients currently take Naltrexone
33 Patients stopped taking Naltrexone
Thekla Sensation: None Overall: Mild Cognition: mild Vision: none Speech: none Swallowing: none Upper limb: moderate Walking: moderate See profile Thekla Low Dose Naltrexone (LDN), 3.75mg daily since Feb 15, 2003
Mr. Kamakazie Sensation: Moderate Overall: Mild Cognition: moderate Vision: mild Speech: mild Swallowing: moderate Upper limb: moderate Walking: moderate See profile Mr. Kamakazie Low Dose Naltrexone (LDN), 4.5mg daily since Jul 11, 2007
Cara Sensation: Moderate Overall: Moderate Cognition: moderate Vision: mild Speech: moderate Swallowing: moderate Upper limb: moderate Walking: moderate See profile Cara Low Dose Naltrexone (LDN), 4.5mg daily since Jul 01, 2008

Brand Names: Low Dose Naltrexone (LDN)
Generic Name: Naltrexone

What is Naltrexone? Naltrexone, in low doses such as 3mg to 4.5mg, has been found to boost the immune system in MS, autoimmune diseases, and central nervous system disorders. Naltrexone was FDA-approved in 1985 for the management of alcohol dependence and opioid dependence at 50mg doses. Read more...

See more information, including instructions, precautions, side effects, and interactions.

Jump to:: Reasons Taken; Dosages; Duration; Patient Evaluations

Reasons Taken

198 patients in the community are taking or have taken Naltrexone.

Reason	# Patients	Percentage of patients
Slow my MS progress	121	61%
Other	22	11%
Slow my ALS progress	12	6%
Stiffness/spasticity	7	3%
Fatigue	6	3%
Treat Parkinson's	5	2%
General health	5	2%
Bladder problems	4	2%
Brain fog	2	1%
Don't know	2	1%
Pain	1	<1%
Treat my HIV	1	<1%

Dosages

Based on the patients currently taking Naltrexone.

Top 10 (Show all)

All (Show Top 10)

0 mg day	0.4 mg day	1 day	1.5 mg day	1.75 mg day	2 mg day	4.5 mg day	3 mg day	3.5 mg day	3.75 mg day	4 mg day	4.25 mg day	4.5 mg day	4.6 mg day	5 mg day	9 mg day	50 mg day
8	1	1	1	1	2	1	34	5	1	10	1	88	1	4	1	2

Duration

How long current patients have been taking Naltrexone or how long patients were taking Naltrexone before stopping.

Currently taking Naltrexone

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
1	8	19	26	24	31

Stopped taking Naltrexone

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
2	8	7	9	2	5

Why Patients Stopped Taking Naltrexone (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Did not seem to work	12	36%
Other	9	27%
Doctor's advice	7	21%
Side effects too severe	6	18%
Not indicated	3	9%
Course of treatment ended	2	6%
Personal research	1	3%
Expense	1	3%

Patient Reported Evaluations

Results from 18 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Major	42%	5
Moderate	25%	3
Slight	8%	1
Can't tell	25%	3

Slow my MS progress

Side-effects (as an overall problem)

Severe	0%	0
Moderate	6%	1
Mild	11%	2
None	83%	15

Top reported side-effects include: Vivid dreams, early morning wakefullness

Summary results are based on 18 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (2 of 18)

feathers4me

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: severe

See profile
by feathers4me
Aug 18, 2008