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Brand Names: Akamin, Minoclin

What is Minocycline? Minocycline is a second-generation, long-acting tetracycline. It is indicated in the treatment of a variety of bacterial infections, including brain and meningeal infections; it is ten times better able to enter the brain than other tetracycline antibiotics. A European trial in ALS starts in 2007. Read more...Click to read more below

See more information, including instructions, precautions, side effects, and interactions.


Reasons Taken

101 patients in the community are taking or have taken Minocycline.

Reason # Patients Percentage of patients
Slow my ALS progress 54 53%
Other 20 19%
Slow my MS progress 15 14%
General health 3 2%
disease-related symptoms 2 1%
Arthritis 1 <1%
Fatigue 1 <1%
Acne 1 <1%

Dosages

Based on the patients currently taking Minocycline.

  0 mg day 0 mg none 20 mg day 50 mg day 100 mg day 200 mg day 400 mg day 500 mg day
  11 Number of Patients: 11 1 Number of Patients: 1 1 Number of Patients: 1 3 Number of Patients: 3 13 Number of Patients: 13 21 Number of Patients: 21 1 Number of Patients: 1 1 Number of Patients: 1  

Duration

How long current patients have been taking Minocycline or how long patients were taking Minocycline before stopping.

Currently taking Minocycline

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
1
4
2
2
1
10

Stopped taking Minocycline

0-1 month 1-3 months 3-6 months 6 months-1year 1-2 years 2 years or more
2
7
4
16
6
11
Why Patients Stopped Taking Minocycline (multiple reasons could be selected)
Reason # Patients Percentage of patients
Did not seem to work 20 41% Did not seem to work: 41%
Doctor's advice 18 37% Doctor's advice: 37%
Side effects too severe 9 18% Side effects too severe: 18%
Other 8 16% Other: 16%
Personal research 6 12% Personal research: 12%
Course of treatment ended 4 8% Course of treatment ended: 8%
Expense 1 2% Expense: 2%
Not indicated 1 2% Not indicated: 2%

Patient Reported Evaluations

Results from 2 patient evaluations. See the overall results and all individual evaluations.

Efficacy (Effect based on reason taken)

Can't tell 100% 1

Other

Side-effects (as an overall problem)

Severe 0% 0
Moderate 0% 0
Mild 0% 0
None 100% 2

Top reported side-effects include:

Summary results are based on 2 individual responses. For more information, see overall results for Adherence, Burden and Cost.

Individual Patient Reported Evaluations (1 of 2)

  • HopeLives
    Sensation: Moderate
    Overall: Mild
    Cognition: moderate
    Vision: moderate
    Speech: none
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
  • HopeLives
  • by HopeLives
    Aug 20, 2008
  • EfficacyCan't tell
  • Side-effectsNone
  • Other

See all evaluation results for Minocycline



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