What is Pirfenidone?

Category: Prescription Drugs

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Generic Name: Pirfenidone

Pirfenidone is an anti-fibrotic and antiinflammation medication used to slow the progression of idiopathic pulmonary fibrosis. It is currently approved in Europe, Asia and Canada, but not the United States.

Reported purpose & perceived effectiveness
Purpose Patients Patients with evaluations Perceived Effectiveness
23 9
4 1

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

side_effects of Pirfenidone"

Severe
2
Moderate
4
Mild
3
None
1

Dosages

Most common dosages (by patients currently taking Pirfenidone)
Dosage Patients
3 capsule(s) daily 2
6 tablet(s) daily 2
9 mg daily 1
9 other daily 1
9 tablet(s) daily 2
9 capsule(s) daily 6
20 mg daily 1
400 mg daily 1
600 mg daily 3
2,403 mg daily 4
Why Patients Stopped Taking Pirfenidone (multiple reasons could be selected)
Reason Patients
Doctor's advice 1
Side effects too severe 1
Other 1
Course of treatment ended 1
See all 3 patients who’ve stopped taking Pirfenidone

Duration

Currently Taking Pirfenidone
Duration Patients
0-1 month 0
1-3 months 0
3-6 months 0
6 months-1 year 6
1-2 years 11
2 years or more 4
Stopped Taking Pirfenidone
Duration Patients
0-1 month 0
1-3 months 0
3-6 months 1
6 months-1 year 0
1-2 years 1
2 years or more 0
Adherence
Always
10 100%
Usually
0 0%
Sometimes
0 0%
Never
0 0%
Burden
Very
0 0%
Somewhat
2 20%
A little
1 10%
Not at all
7 70%
Cost
$200+
2 29%
$100-199
0 0%
$50-99
1 14%
$25-49
1 14%
< $25
3 43%
Last updated:

1 patient evaluation for Pirfenidone

Mumbai
Portrait_default_thumb
Mumbai
Data Quality: 2 stars
  • Sex: M
  • Age: 68
PF Severity:
I am: g
I have:
Idiopathic Pulmonary Fibrosis

See Mumbai's full Pirfenidone history

Nov 26, 2013 (Started Mar 02, 2013)

  • Perceived effectiveness for Idiopathic Pulmonary Fibrosis: Major
  • Side Effects: Moderate
  • Adherence: Always
  • Burden: Not at all
Dosage: 8 tablet(s) Daily
Advice & Tips: I started with 2 tablets a day . I had headache after 10 days . I stopped for 4 days I started again. After 3 week I started 4 tablets a day . I started feeling of tiredness . I had headache after 15 days . I stopped for 3 days I started again 4 tablets . I reached level of 8 tablets with in 3 months . I do checking of liver / renal / lipid profile and RBC count every quarter . All parameters of above test gone up high in last 8 months in comparatively before start of pirfenidone . As per my medical doctor they are in safe limits.my oxygen level after 6 mts walk improved in 9 months .my Fvc is now 74 percent which was 57 percent in year 2010 .i take nutrients like nano curcumin / dry ginger / basil extract tablets and alpha lipolic acid tablets .i take 2 tablets of rabeperazole as anti acid for reflux
Cost: $200+ monthly

  • 0 helpful marks
Last updated:
Showing 1 of 1 patient evaluation for Pirfenidone