Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Jan 05, 2012)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Dec 01, 2012
200 mg
Weekly
Slight
None
Usually
Somewhat
Jun 19, 2012
200 mg
Weekly
Slight
None
Usually
A little
May 01, 2012
200 mg
Daily
None
None
Always
A little
Apr 20, 2012
Daily
?Can't tell
None
Usually
Somewhat
Apr 14, 2012
Daily
Major
None
Usually
Somewhat
Date
Dec 01, 2012
Advice & Tips
Performed self injection of sodium chlorite after end of NP001 trial but no longer seemed to be working.
Cost
< $25 monthly
Date
Jun 19, 2012
Advice & Tips
On Monday June 18 I self administered my weekly infusion of 4 ml = 200 mg of sodium chlorite. About one hour later I went for my daily 1/2 hour swim. For the first time since starting this swimming program about 3 weeks ago I didn't feel like I was on the verge of drowning, i.e., just barely able to keep my head above water. Also, my breathing felt more 'productive'. Previously I would swim one lap and rest at the end breathing very hard, but it felt as if I couldn't get enough air into my lungs and I would breath hard for along time. This time it felt normal where I would breath hard for only a short time.
Cost
< $25 monthly
Date
May 01, 2012
Advice & Tips
May 30 infusion. No improvements.
Cost
< $25 monthly
Date
Apr 20, 2012
Advice & Tips
Performed an infusion Friday April 20. Unlike the previous infusion I did not experience an improvement in swallowing.
Cost
< $25 monthly
Date
Apr 14, 2012
Advice & Tips
I have now given myself two rounds of IV infusions of off the shelf sodium chlorite. I was ready to give up on sodium chlorite because its effect has been diminishing since the tail end of the NP001 study. However, was pleasantly surprised this time.
Lately I have been drinking seltzer water rather than tap water because I find it much easier to swallow. In fact, I have not been able to swallow plain water for over a month now. Last night I grabbed my glass of water and was drinking it while watching my son on the swing. While I usually focus like a laser on the task of drinking I wasn't paying attention, rather I was focused on my son. After a few sips of water I realized that the water had gone flat and I was still able to drink it. Also I could drink it without doing the chin tuck, which has also been necessary for the last couple of months. The difference is small but unquestionably real.
I am approaching my one year 'chlorite' anniversary. I had my first infusion in June of 2011. This is very encouraging and tells me that chlorite is still having some effect.
Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Dec 14, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Mar 10, 2012
467 mL
Daily
Slight
Mild
Always
Somewhat
Dec 21, 2011
467 mL
Daily
Slight
Mild
Always
A little
Date
Dec 21, 2011
Advice & Tips
I've finished my first 8 days of oral sodium chlorite: 8 days on, 14 days off. • 0.75 mg/kg. @ 82 kgs. bodyweight. • 467 ml. each day in 2 or 3 servings, by glass w/straw.
• No antioxidant supplements during “ON” cycle. Resumed those supplements during the “OFF” cycle. • Continued to take B12 (methylcobalamin) 1.5 mg, and 2 probiotic capsules daily during this On cycle. Also, "Dabigatran" for edema (swollen feet), and Milk of Magnesia laxative tablets.
It's been like a yo-yo. Sometimes I really had to nap, other times I had great energy. Three mild headaches in total, with no diarrhea or nausea at all. My usual soft stool became harder and less plentiful. Bowel movements required more effort, but no constipation.
No particular “recovered functions”, but no real discomfort either. Overall, in a very subtle way, I feel good!
OFF cycle (2 weeks, Dec. 22~Jan. 5) Possible increase in overall fasciculations. Daily energy leveled off, back to my usual low.
I'll continue taking this treatment because the benefits might increase with each successive cycle.
Purpose:ALS (Amyotrophic Lateral Sclerosis)(Started Dec 08, 2011)
Date
Dosage
Perceived effectiveness
Side Effects
Adherence
Burden
Feb 06, 2012
35 mg
Daily
None
Mild
Always
A little
Feb 02, 2012
35 mg
Daily
?Can't tell
None
Always
Very
Jan 17, 2012
35 mg
Daily
Slight
Mild
Always
A little
Jan 16, 2012
35 mg
Daily
Slight
Mild
Always
Somewhat
Jan 12, 2012
35 mg
Daily
?Can't tell
Mild
Always
A little
Dec 28, 2011
59 mg
Daily
None
Moderate
Always
A little
Dec 27, 2011
59 mg
Daily
?Can't tell
Mild
Always
A little
Dec 23, 2011
59 mg
Daily
?Can't tell
Moderate
Always
Not at all
Dec 15, 2011
35 mg
Daily
?Can't tell
Mild
Always
Not at all
Dec 14, 2011
35 mg
Daily
?Can't tell
Mild
Always
Not at all
Dec 13, 2011
35 mg
Daily
None
Mild
Always
Not at all
Dec 08, 2011
35 mg
Daily
?Can't tell
Mild
Always
Not at all
Date
Feb 06, 2012
Advice & Tips
Not sure if I am going to continue the treatment as it seems as if I loosing muscle faster as a result. Looking forward I will be looking at bacteria as the source of my issue and treating my blood with UV lighting to kill the bacteria.
Date
Feb 02, 2012
Advice & Tips
This is our first time taking SC at night. In addition to .75mg/kg of SC plus kosher salt, we added .3ml of lemon juice. Hope this makes a difference. To date we have seen no gains from this. We will do our best to see if we have seen an loss of functionality; perhaps we have not lost anything since starting treatment in December.
Date
Jan 17, 2012
Advice & Tips
Completed five days of taking SC. Yawning may have gone down, but not sure of other benefits.
Date
Jan 16, 2012
Advice & Tips
Completed fifth day and final day and noticed that I am not yawning as much. Perhaps able to breath better but not sure. I am certain this started after my first day of taking Sodium Chlorite of this round. I am only going five days on and 16 days off, so this is my last day.
Date
Jan 12, 2012
Advice & Tips
We started up today our SC treatment. This time we are reducing the dose back to .75mL/kg with no lemon juice added. The pH for the solution is just at or a little above 7.0. Excess saliva appears to be the initial side effect, no nausea as reported the last round.
Date
Dec 28, 2011
Advice & Tips
I am going to stop treatment after five rounds. The side effects coupled with the pain in my body out of not taking my antioxidants is too much. I think I may have had to high of a dose at 59mg (1.25mg/kg). In 16 days I will resume at 35mg (.75mg/kg). Certainly if anyone has any suggestions let me know.
Date
Dec 27, 2011
Advice & Tips
To this point, day 5 of treatment, osc is looked upon as a "have to" then a "want to". I am tired of being nauseas and not eating for an extended period of time. I miss my healthy chocolate which is high in antioxidant, which is why I am avoiding it.
Date
Dec 23, 2011
Advice & Tips
For this round we added both a dash of kosher salt and .3ml of lemon juice. Based on our pH paper we can tell the acidity is at 6.5. Took in the morning and fell right back to sleep.
Date
Dec 15, 2011
Advice & Tips
Will begin treatment at a higher concentration and add a pinch of salt in 16 days. For third round will add lemon juice.
Date
Dec 14, 2011
Advice & Tips
I am completing my first round today of OSC. At this time, I experienced mild side effects. I did a high dose concentration in what amounted to a little less than shot glass of solution. I will be increasing the amount of SC in the next batch.
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