What is Gilenya?

Category: Prescription Drugs

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Generic Name: Fingolimod

Gilenya, a brand name for the drug fingolimod, is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS flare-ups (relapses).

Side effects

Side effects as an overall problem

side_effects of Gilenya"

Severe
27
Moderate
13
Mild
37
None
104

Commonly reported side effects, conditions, and hospitalizations associated with Gilenya

8
8
6
6
Hospitalization 6
5

Dosages

Most common dosages (by patients currently taking Gilenya)
Dosage Patients
0.5 mg daily 182
0.05 mg daily 23
1 capsule(s) daily 19
1 cap(s) daily 14
1 mg daily 11
5 mg daily 11
50 mg daily 4
10 mg daily 3
0.5 mg m,w,f 2
0.5 mcg daily 2
Why Patients Stopped Taking Gilenya (multiple reasons could be selected)
Reason Patients
Doctor's advice 34
Side effects too severe 29
Did not seem to work 27
Other 18
Personal research 4
Not indicated 2
Expense 1
See all 78 patients who’ve stopped taking Gilenya

Duration

Currently Taking Gilenya
Duration Patients
0-1 month 1
1-3 months 1
3-6 months 7
6 months-1 year 6
1-2 years 23
2 years or more 89
Stopped Taking Gilenya
Duration Patients
0-1 month 10
1-3 months 12
3-6 months 8
6 months-1 year 21
1-2 years 14
2 years or more 8
Adherence
Always
162 90%
Usually
10 6%
Sometimes
1 1%
Never
8 4%
Burden
Very
4 2%
Somewhat
4 2%
A little
5 3%
Not at all
168 93%
Cost
$200+
11 8%
$100-199
9 6%
$50-99
9 6%
$25-49
20 14%
< $25
91 65%
Last updated:

27 patient evaluations for Gilenya

crisd39
981 thumb
crisd39
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See crisd39's full Gilenya history

Aug 2, 2014 (Started Feb 15, 2012)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

Jun 22, 2013 (Started Feb 15, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

  • 0 helpful marks
Jimmie
Portrait default thumb
Jimmie
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Jimmie's full Gilenya history

Jul 9, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
JoeC
41029 thumb
JoeC
Sex: M
Data Quality: 1 star
Relapse: Mild
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See JoeC's full Gilenya history

May 23, 2014 (Started Jul 01, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Go for it! I'm so happy I went through the 5 months of test. I have not felt this good in years. I'm not 100% back to normal but I do feel so much better. Little on no foot drag. Almost no brain fog. Almost no hand tremble! Played my guitar again. I know I have a long way to go but playing made me feel really happy.
Cost: < $25 monthly

  • 1 helpful mark
Last updated:
Showing 3 of 27 patient evaluations for Gilenya