What is Gilenya?

Category: Prescription Drugs

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Generic Name: Fingolimod

Gilenya, a brand name for the drug fingolimod, is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS flare-ups (relapses).

Side effects

Side effects as an overall problem

side_effects of Gilenya"

Severe
28
Moderate
12
Mild
36
None
102

Commonly reported side effects, conditions, and hospitalizations associated with Gilenya

9
8
6
6
Hospitalization 6
5

Dosages

Most common dosages (by patients currently taking Gilenya)
Dosage Patients
0.5 mg daily 179
0.05 mg daily 23
1 capsule(s) daily 20
1 cap(s) daily 14
5 mg daily 11
1 mg daily 10
10 mg daily 3
20 mg daily 3
50 mg daily 3
0.5 mg m,w,f 2
Why Patients Stopped Taking Gilenya (multiple reasons could be selected)
Reason Patients
Doctor's advice 34
Side effects too severe 29
Did not seem to work 26
Other 17
Personal research 4
Expense 1
Not indicated 1
See all 75 patients who’ve stopped taking Gilenya

Duration

Currently Taking Gilenya
Duration Patients
0-1 month 3
1-3 months 4
3-6 months 3
6 months-1 year 9
1-2 years 28
2 years or more 90
Stopped Taking Gilenya
Duration Patients
0-1 month 10
1-3 months 12
3-6 months 7
6 months-1 year 21
1-2 years 13
2 years or more 8
Adherence
Always
160 90%
Usually
9 5%
Sometimes
1 1%
Never
8 4%
Burden
Very
4 2%
Somewhat
4 2%
A little
5 3%
Not at all
165 93%
Cost
$200+
11 8%
$100-199
9 7%
$50-99
10 7%
$25-49
20 14%
< $25
88 64%
Last updated:

27 patient evaluations for Gilenya

Jimmie
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Jimmie
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See Jimmie's full Gilenya history

Jul 9, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
JoeC
41029 thumb
JoeC
Sex: M
Data Quality: 1 star
Relapse: Mild
Sensation: None
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: none
Upper limb: moderate
Walking: moderate
I am: vg
I have:
MS

See JoeC's full Gilenya history

May 23, 2014 (Started Jul 01, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Advice & Tips: Go for it! I'm so happy I went through the 5 months of test. I have not felt this good in years. I'm not 100% back to normal but I do feel so much better. Little on no foot drag. Almost no brain fog. Almost no hand tremble! Played my guitar again. I know I have a long way to go but playing made me feel really happy.
Cost: < $25 monthly

  • 0 helpful marks
Rick N
29865 thumb
Rick N
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See Rick N's full Gilenya history

Mar 7, 2014 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Slight
  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: of course a pill is better than giving myself a shot, but that is not the full evaluation point that I would make. Gelenya messed up my thinking processes and threw me into the throe's of depression and anxiety issues. I would noo longer advise this treatment to anyone.
Cost: $25-49 monthly

Apr 7, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for to slow down progression: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost: $25-49 monthly

Feb 6, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I like this treatment as opposed to daily shots.
Cost: $25-49 monthly

Jan 17, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $25-49 monthly

  • 2 helpful marks
Last updated:
Showing 3 of 27 patient evaluations for Gilenya