What is Gilenya?

Category: Prescription Drugs

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Generic Name: Fingolimod

Gilenya, a brand name for the drug fingolimod, is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS flare-ups (relapses).

Side effects

Side effects as an overall problem

side_effects of Gilenya"

Severe
27
Moderate
13
Mild
38
None
106

Commonly reported side effects, conditions, and hospitalizations associated with Gilenya

8
8
6
Hospitalization 6
6
5

Show all 107 reported side effects

Dosages

Most common dosages (by patients currently taking Gilenya)
Dosage Patients
0.5 mg daily 182
0.05 mg daily 23
1 capsule(s) daily 18
1 cap(s) daily 14
1 mg daily 11
5 mg daily 11
50 mg daily 4
10 mg daily 3
0.5 mg m,w,f 2
0.5 g daily 2
Why Patients Stopped Taking Gilenya (multiple reasons could be selected)
Reason Patients
Doctor's advice 35
Side effects too severe 29
Did not seem to work 28
Other 18
Personal research 4
Not indicated 2
Expense 1
See all 80 patients who’ve stopped taking Gilenya

Duration

Currently Taking Gilenya
Duration Patients
0-1 month 1
1-3 months 2
3-6 months 5
6 months-1 year 9
1-2 years 19
2 years or more 89
Stopped Taking Gilenya
Duration Patients
0-1 month 10
1-3 months 12
3-6 months 8
6 months-1 year 21
1-2 years 15
2 years or more 9
Adherence
Always
165 90%
Usually
10 5%
Sometimes
1 1%
Never
8 4%
Burden
Very
4 2%
Somewhat
4 2%
A little
5 3%
Not at all
171 93%
Cost per month
$200+
11 8%
$100-199
9 6%
$50-99
10 7%
$25-49
20 14%
< $25
92 65%
Last updated:

26 patient evaluations for Gilenya

aubri328
44032 thumb
aubri328
Sex: F
Data Quality: 3 stars
Sensation: None
Overall: None
Cognition: none
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: none
I am: n
I have:
MS

See aubri328's full Gilenya history

Nov 17, 2014 (Started Feb 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: My WBC count dropped very low, dangerously low. I am hoping that will be able to return to taking this medication once it returns. The biggest thing is to MAKE SURE you keep your Dr appointments and DO YOUR BLOOD WORK!
Cost: $50-99 monthly

Aug 18, 2013 (Started Feb 15, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: Taking this with the rest of your medications is key. The biggest difficultly may be how you receive your medication. If you normally go to the pharmacy and pick up your prescriptions most insurance carries require this drug to be handled through "specialty" pharmacies and delivered by mail ordering can be automatic as long as you set it up and they allow it. The company has programs to help save on costs.
Cost: $25-49 monthly

  • 0 helpful marks
crisd39
981 thumb
crisd39
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
I am: n
I have:
MS

See crisd39's full Gilenya history

Aug 2, 2014 (Started Feb 15, 2012)

  • Perceived effectiveness for Multiple Sclerosis: None
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

Jun 22, 2013 (Started Feb 15, 2012)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 capsule(s) Daily
Cost: < $25 monthly

  • 0 helpful marks
Jimmie
Portrait default thumb
Jimmie
Sex: M
Data Quality: 1 star
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: moderate
Speech: moderate
Swallowing: moderate
Upper limb: moderate
Walking: moderate
I am: g
I have:
MS

See Jimmie's full Gilenya history

Jul 9, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Advice & Tips: If it's working, and I don't know, it's great, no side effects
Cost: < $25 monthly

Jan 12, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 1 helpful mark
Last updated:
Showing 3 of 26 patient evaluations for Gilenya