What is Gilenya?

Category: Prescription Drugs

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Generic Name: Fingolimod

Gilenya, a brand name for the drug fingolimod, is used to treat relapsing forms of multiple sclerosis (MS) by decreasing the number of MS flare-ups (relapses).

Reported purpose & perceived effectiveness
Purpose Patients Patients with evaluations Perceived Effectiveness
325 167
11 3
1 1
1 0
1 0
1 0

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell

Side effects

Side effects as an overall problem

side_effects of Gilenya"

Severe
27
Moderate
12
Mild
35
None
99

Commonly reported side effects, conditions, and hospitalizations associated with Gilenya

8
7
6
6
5
Hospitalization 5

Dosages

Most common dosages (by patients currently taking Gilenya)
Dosage Patients
0.05 mg daily 21
0.5 mg m,w,f 2
0.5 mg daily 172
1 cap(s) daily 14
1 mg daily 9
1 capsule(s) daily 18
5 mg daily 11
10 mg daily 3
20 mg daily 3
50 mg daily 3
Why Patients Stopped Taking Gilenya (multiple reasons could be selected)
Reason Patients
Doctor's advice 34
Side effects too severe 27
Did not seem to work 26
Other 17
Personal research 4
Expense 1
Not indicated 1
See all 73 patients who’ve stopped taking Gilenya

Duration

Currently Taking Gilenya
Duration Patients
0-1 month 0
1-3 months 1
3-6 months 4
6 months-1 year 13
1-2 years 24
2 years or more 74
Stopped Taking Gilenya
Duration Patients
0-1 month 10
1-3 months 11
3-6 months 7
6 months-1 year 20
1-2 years 13
2 years or more 8
Adherence
Always
157 91%
Usually
8 5%
Sometimes
1 1%
Never
7 4%
Burden
Very
4 2%
Somewhat
4 2%
A little
4 2%
Not at all
161 93%
Cost
$200+
11 8%
$100-199
9 7%
$50-99
10 7%
$25-49
19 14%
< $25
85 63%
Last updated:

27 patient evaluations for Gilenya

Rick N
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Rick N
Sex: M
Data Quality: 3 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: none
Swallowing: none
Upper limb: mild
Walking: severe
I am: g
I have:
MS

See Rick N's full Gilenya history

Mar 7, 2014 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Slight
  • Perceived effectiveness for to slow down progression: Slight
  • Side Effects: Moderate
  • Adherence: Usually
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: of course a pill is better than giving myself a shot, but that is not the full evaluation point that I would make. Gelenya messed up my thinking processes and threw me into the throe's of depression and anxiety issues. I would noo longer advise this treatment to anyone.
Cost: $25-49 monthly

Apr 7, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for Multiple Sclerosis: Major
  • Perceived effectiveness for to slow down progression: Major
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I hare found that Gilenya is convenient to adhere to and I have not side effects whatsoever. Ii have heard stories about sudden death from this treatment. Who knows why the deaths occured but 1000's of people are in this treatment. I tend to believe it is safe. One condition has been higher than normal colds and flu, Possibly dur to redused white cell / immunity
Cost: $25-49 monthly

Feb 6, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: I like this treatment as opposed to daily shots.
Cost: $25-49 monthly

Jan 17, 2012 (Started Nov 11, 2011)

  • Perceived effectiveness for to slow down progression: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Cost: $25-49 monthly

  • 1 helpful mark
InIt4theParking
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InIt4theParking
Data Quality: 2 stars
  • Sex: F
  • Age: 33y
  • Duration: 5 yrs
PRO survey: PRO 3
Quality of Life:
  • Mental: Mild
  • Physical: None
4 seizures
31 weeks ago
I am: b
I have:
Epilepsy

See InIt4theParking's full Gilenya history

Feb 5, 2014 (Started Aug 28, 2013)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: Mild
  • Adherence: Always
  • Burden: Not at all
Dosage: 0.5 mg Daily
Advice & Tips: Had to stop so I could get pregnant. 2 month wash-out period.

  • 0 helpful marks
Jimmie
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Jimmie
Sex: M
Data Quality: 2 stars
Sensation: Moderate
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
I am: g
I have:
MS

See Jimmie's full Gilenya history

Jan 12, 2014 (Started Jan 07, 2014)

  • Perceived effectiveness for Multiple Sclerosis: Can’t tell
  • Side Effects: None
  • Adherence: Always
  • Burden: Not at all
Dosage: 1 mg Daily
Cost: < $25 monthly

  • 0 helpful marks
Last updated:
Showing 3 of 27 patient evaluations for Gilenya