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Taking Intravenous Immuno Globulin (IVIG)
17 Patients currently take Intravenous Immuno Globulin (IVIG)
24 Patients stopped taking Intravenous Immuno Globulin (IVIG)
claudiamedic
Mouth/throat: moderate
Arms: moderate
Chest: moderate
Legs: moderate
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claudiamedic
3500 mg monthly since Dec 10, 2007
Tom M
Mouth/throat: mild
Arms: mild
Chest: mild
Legs: mild
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Tom M
35000 mg since May 12, 2008
schwenks
Sensation: severe
Overall: moderate
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: moderate
Upper limb: moderate
Walking: severe
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schwenks
0 mg monthly since Apr 23, 2007

forum

What are people saying about Intravenous Immuno Globulin (IVIG)?

There are 1061 posts in our forum about Intravenous Immuno Globulin (IVIG). Join now and see what people are saying.

Intravenous Immune Globulin (IVIG) is a human blood product consisting of antibodies which is used to treat immune disorders including myaesthenia gravis (MG) and multifocial motor neuropathy (MMN). It is sometimes trialled on ALS patients during the diagnostic process to rule out other illnesses. Read more...Click to read more below


What we've learned

Why Patients Take Intravenous Immuno Globulin (IVIG)

slow my disease's progress
slow my disease's progress: 100% 8
Other
Other: 88% 7
Fatigue
Fatigue: 12% 1
Don't know
Don't know: 12% 1

Patient Dosages

10 mg monthly 15 mg monthly 25 mg monthly 30 mg monthly 32 mg monthly 60 mg monthly 65 mg monthly 140 mg monthly 150 mg monthly 550 mg monthly 2000 mg monthly 3500 mg monthly N/A
1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 1 Number of Patients: 1 5 Number of Patients: 5  

How Long Current Patients Have Been Taking Intravenous Immuno Globulin (IVIG)

< 1 month > 1 month > 3 months > 6 months > 1 year > 2 years
1
0
1
0
3
4

Why Patients Stopped Taking Intravenous Immuno Globulin (IVIG) (multiple reasons could be selected)

Did not seem to work
Did not seem to work: 100% 14
Course of treatment ended
Course of treatment ended: 64% 9
Doctor's advice
Doctor's advice: 50% 7
Other
Other: 29% 4
Side effects too severe
Side effects too severe: 21% 3
Expense
Expense: 7% 1
Not indicated
Not indicated: 7% 1

How Long Patients Took Intravenous Immuno Globulin (IVIG) Before Stopping

< 1 month > 1 month > 3 months > 6 months > 1 year > 2 years
8
5
3
4
3
1

Average: 1 star 2 star 3 star 4 star Intravenous Immuno Globulin (IVIG) Ratings

3 stars3 stars3 stars
3: 100% 1
1 star
1: 100% 1


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