Dec 24, 2014 (Started Oct 27, 2014)

  • Effectiveness
    Major (for epilepsy)
  • Effectiveness
    Major (for seizures)
  • Side effects
    Moderate (for Overall) (daytime sleepiness, dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 750 mg Twice daily
Advice & Tips: As my G4 GBM has 'woken up' after debulking surgery, it's tickled the brain and caused a few seizures, so we've upped the dose to 750mg twice daily, which has increased the sensation of sleepiness and mild nausea - but really nothing to complain about. And IIRC, these symptoms do reduce after a week or two. Not feeling any of the symptoms some people get (no mood changes, anger or agressiveness problems).

Nov 28, 2014 (Started Oct 27, 2014)

  • Effectiveness
    Major (for seizures)
  • Side effects
    Mild (for Overall) (daytime sleepiness, dizziness)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 500 mg Twice daily
Advice & Tips: I've got on so much better than with Phenytoin. Very mild dizziness and faintest hint of what may be a sort of nausea, neither of which are really worth mentioning, but worth it for being completely seizure free.
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