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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter W.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
ava
Sex: F
Data Quality: 1 star
ALS: 17 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
LUCY WAX Female, 71 years BROOKLYN, NY First Symptom: 01/97
Dx: 04/99
carolynsusan
Sex: F
Data Quality: 0 stars
ALS: 11 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Carolyn Way Female, 67 years Elk Grove, CA First Symptom: 01/03
Dx: 02/07
raven1937
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: moderate
Arms: mild
Chest: none
Legs: moderate
James Weaver Male, 77 years Geneseo, NY First Symptom: 09/06
Dx: 02/07
VickiLynn
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Vicki Weaver Female, 58 years Middleburg, FL First Symptom: 05/05
Dx: 02/06
ThorstenW
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Thorsten Wegner Male, 42 years Frankfurt, Germany First Symptom: 07/01
Dx: 06/02
viewsun
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
li wei member since
wej
Data Quality: 0 stars
ALS: 13 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
Alan Weinstein First Symptom: 02/01
Dx: 05/03
panamokapal
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
thomas weissbach Male, 52 years ridge, NY First Symptom: 04/04
Dx: 12/05
RILU
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: none
Chest: none
Legs: mild
RILU Wejher Male, 61 years Pomorze, Trójmiasto First Symptom: 06/07
Dx: 06/07
JuJuSue
Sex: F
Data Quality: 0 stars
ALS: 7 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Julie Weldy Female, 50 years Bremen, IN First Symptom: 05/07
Dx: 03/09
Margaret
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Margaret Wells Female, 48 years Basingstoke, United Kingdom First Symptom: 06/01
Dx: 01/03
RuleBoy
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Martin Welsh Male, 60 years Camino, CA First Symptom: 05/04
Dx: 05/05
ceiligirl
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: mild
Legs: severe
Maureen Welty Female, 56 years FL, United States First Symptom: 07/09
Dx: 12/09
Wolli
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: mild
Legs: moderate
Wolfgang Wenzel Male, 62 years Germany First Symptom: 01/01
Dx: 08/04
moolaw
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Ventilator Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
Carol Werner Female, 59 years Merino, CO First Symptom: 08/08
Dx: 03/10
knowsolittle
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: severe
Eric Werts Male, 70 years Vancouver, WA First Symptom: 01/07
Dx: 05/08
westjlittle
Sex: M
Data Quality: 2 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
James West Male, 47 years Englewood, CO First Symptom: 02/05
Dx: 10/06
pet
Sex: F
Data Quality: 2 stars
ALS: 13 yrs
Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
Petra West Female, 56 years Germany First Symptom: 04/01
Dx: 10/01
Artisto
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: moderate
Arthur Westendorf Male, 42 years FL, United States First Symptom: 06/10
Dx: 10/10
michaeldw
Sex: M
Data Quality: 3 stars
ALS: 5 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: moderate
Michael Westwell Male, 70 years Reading, United Kingdom First Symptom: 03/09
Dx: 09/10