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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 194 PALS in the registry starting with the letter S.

Jump to last name:

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
kathys
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Kathy seward Female, 63 years flat rock, MI First Symptom: 09/06
Dx: 06/07
lebanon
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
roger shalhoub member since Oct 2006
shapleigh2
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap
Bulbar: severe
Arms: none
Chest: mild
Legs: mild
Scott Shapleigh Male, 41 years MD, United States First Symptom: 02/09
Dx: 05/09
jackie1
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: moderate
Legs: severe
jackie sharp Female, 52 years oxford, United Kingdom First Symptom: 06/01
Dx: 01/02
cjl326
Sex: F
Data Quality: 2 stars
ALS: 5 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: moderate
Carla Shearon Female, 59 years Bloomfield , NE First Symptom: 08/07
Dx: 01/09
Moira-Anne
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Moira-Anne Shelley Female, 68 years Upper Hutt, New Zealand First Symptom: 02/05
Dx: 04/05
diana
Sex: F
Data Quality: 0 stars
ALS: 15 yrs
Bi-Pap
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
diana shelton Female, 52 years oceana, WV First Symptom: 03/98
Dx: 04/03
ngim_pasang
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Ngim Pasang Sherpa Male, 50 years Shantinagar 108/109, New Baneshwor, Kathmandu - 34, Nepal member since May 2006
Ricardo Shimosakai
Sex: M
Data Quality: 0 stars
ALS: 12 yrs
Wheelchair
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Ricardo Shimosakai Male, 45 years Sao Paulo, Sao Paulo First Symptom: 04/01
Mjo
Sex: F
Data Quality: 0 stars
ALS: 3 yrs
Feeding tube
Bulbar: severe
Arms: none
Chest: none
Legs: moderate
Mary Jo Shipe Female, 69 years Warner, NH First Symptom: 01/04
Dx: 10/04
knuckle heads
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Frank Shivick Male, 63 years Springfield, MA First Symptom: 03/07
Dx: 09/07
Nailah
Sex: F
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Nailah Siddique Female Chicago, IL member since May 2006
Nancy
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Nancy Sigler member since Sep 2006
Gudjon
Sex: M
Data Quality: 0 stars
PLS: 11 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Gudjon Sigurdsson Male, 53 years Hafnarfjordur, Iceland First Symptom: 03/02
Dx: 03/04
fals62010
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
Tim Silva Male, 35 years Las Vegas, NV member since Jun 2010
CombatALS
Sex: F
Data Quality: 0 stars
ALS: 21 yrs
Ventilator Wheelchair
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Rosa Silveira Female, 53 years Miami, FL First Symptom: 12/91
Dx: 10/92
isystems
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
Stan Silver Male, 70 years New York City, NY First Symptom: 10/04
Dx: 12/05
Chris
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: mild
Christopher Simmons Male, 78 years Eureka Springs, AR First Symptom: 12/03
Dx: 06/04
RobS.
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Rob Simms Male, 54 years Preston, Hull, England First Symptom: 08/02
Dx: 03/05
locura
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Elisa Simon -Zurita Female, 56 years Madrid, Madrid First Symptom: 03/04
Dx: 02/05

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