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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig’s Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.

There are PALS in the registry starting with the letter P.

Jump to last name:

A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z

Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Helterskelter
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Stefan Poehl Male, 47 years Braunschweig, Niedersachsen First Symptom: 03/08
Dx: 10/08
MgoBlueJP
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: none
Legs: mild
Jerry Poertner Male, 60 years Elkhart, IN First Symptom: 12/06
Dx: 06/07
Alexp
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Mike Pohorylo Male, 62 years Suffield, CT First Symptom: 07/10
Dx: 06/11
jpolden15
Sex: M
Data Quality: 2 stars
ALS: 14 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
James A Polden Male, 66 years Lethbridge, Alberta, AB First Symptom: 05/00
Dx: 01/08
Loveme
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Nancy Polisso Female, 48 years Mountain View, CA First Symptom: 11/08
Dx: 05/09
poniek
Sex: M
Data Quality: 2 stars
ALS: 12 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: severe
Krzysztof Poniecki Male, 51 years Lodz, Poland First Symptom: 07/02
Dx: 10/03
buickgs400
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
victor poole Male, 57 years Tulsa, OK First Symptom: 06/01
Dx: 09/01
johnpp
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Feeding tube
Bulbar: moderate
Arms: mild
Chest: none
Legs: mild
John Poorman Male, 64 years Schoharie, NY First Symptom: 01/12
Dx: 07/13
fla-cherie
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Cherie Pophal Female, 60 years Molino, FL First Symptom: 02/05
Dx: 02/06
red wine
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Feeding tube
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Audrey Porter Female, 61 years NC, United States First Symptom: 07/06
Dx: 03/07
Joel Porter
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: mild
Chest: mild
Legs: mild
Joel Porter Male, 65 years Austin, TX First Symptom: 08/04
Dx: 07/05
anniep65
Sex: F
Data Quality: 0 stars
ALS: 8 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: none
Legs: severe
Annie Portz Female, 67 years eldora, IA First Symptom: 01/06
Dx: 04/06
Kellygirl04
Sex: F
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
Debbie Post Female, 58 years byram, NJ First Symptom: 06/08
Dx: 07/10
jdpottinger
Sex: F
Data Quality: 0 stars
ALS: 10 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Jessica Pottinger Female, 57 years Tucson, AZ First Symptom: 03/04
Dx: 01/05
yvan15
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
yvan poulin Male, 52 years st-basile, QC First Symptom: 11/08
Dx: 05/09
ifaredfisher
Sex: M
Data Quality: 1 star
ALS: 4 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Eric Powell Male, 39 years NC, United States First Symptom: 06/10
Dx: 12/10
Carol
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Carol Preiser Female, 66 years Manchester, TN First Symptom: 04/05
Dx: 01/06
eleftherp
Sex: M
Data Quality: 2 stars
ALS: 7 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
ELEFTHERIOS PRIFTIS Male, 37 years CORFU, Greece First Symptom: 04/07
Dx: 08/07
prochnavy
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Wendy Prochnavy member since
joane53
Sex: F
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: none
Chest: mild
Legs: mild
Joane Props Female, 61 years Logan, OH First Symptom: 01/08
Dx: 10/08