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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 172 PALS in the registry starting with the letter M.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
dman
Sex: M
Data Quality: 0 stars
ALS: 7 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: none
Arms: severe
Chest: moderate
Legs: severe
Dennis Mandvill Male, 52 years Tulsa, OK First Symptom: 07/05
Dx: 02/06
Jamie Lee Maner
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Jamie Lee Maner Female, 38 years Birmingham, AL First Symptom: 01/02
Dx: 11/03
Walter Kelly
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Lloyd Maness Male, 70 years Ramseur, NC First Symptom: 06/06
Dx: 07/07
bsm8286
Sex: M
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
Barry Mangan Male, 55 years Tacoma, WA First Symptom: 05/09
Dx: 01/10
Bashert
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
Chris Mangiapane Male, 56 years Oakland, CA First Symptom: 01/11
Dx: 08/11
WF8
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bi-Pap
Bulbar: none
Arms: mild
Chest: mild
Legs: moderate
Harriet Mann Female, 65 years West Yorkshire, United Kingdom First Symptom: 12/07
Dx: 04/08
fred
Sex:
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Frederick Manning member since Apr 2006
The Watchman
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Wilton (AL) Marble Male, 66 years Gulfport, MS First Symptom: 09/04
Dx: 05/06
sharkie1
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Henry Marcuzzi member since Apr 2008
daniel
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
marin marin Male, 57 years VALENCIA, Espana member since Apr 2006
reviva
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: severe
Jeffrey Marmelzat Male, 65 years Santa Ynez, CA First Symptom: 11/03
Dx: 04/05
herman
Sex: M
Data Quality: 0 stars
ALS: 14 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: none
Legs: moderate
Doug Mars Male, 58 years Owosso, MI First Symptom: 08/98
Dx: 04/99
sharob
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Rob Marshall Male, 41 years Nottingham, United Kingdom First Symptom: 01/02
Dx: 07/02
allturnatives
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bulbar: moderate
Arms: none
Chest: none
Legs: mild
Teresa Marston Female, 67 years France First Symptom: 07/08
Dx: 11/11
Lucky Tex
Sex: M
Data Quality: 2 stars
ALS: 6 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
Larry Martin Male, 70 years Spring, TX First Symptom: 01/05
Dx: 11/07
horse
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair
Bulbar: moderate
Arms: severe
Chest: none
Legs: severe
MARJORIE MARTIN Female, 57 years CLATSKANIE, OR First Symptom: 07/07
Dx: 11/06
Zack 713
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: none
Legs: moderate
Michael Martin Male, 61 years Houston, TX First Symptom: 04/08
Dx: 01/09
Patriloco
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Wheelchair
Bulbar: none
Arms: severe
Chest: none
Legs: moderate
Patrick Martin Male, 39 years Val Morin, QC First Symptom: 10/09
Dx: 02/10
cookielady
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
Edna Martin Female, 82 years Lodi, CA First Symptom: 05/04
Dx: 11/07
dr don
Sex: M
Data Quality: 0 stars
ALS: ? yrs
Bi-Pap Feeding tube
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
DON MARTIN Male, 64 years somerville, MA Dx: 08/05

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