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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 88 PALS in the registry starting with the letter D.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
pals nz
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Terry Dagnin Male, 57 years Auckland, New Zealand First Symptom: 03/09
Dx: 02/11
gailHD
Sex: F
Data Quality: 2 stars
ALS: 7 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: severe
Gail Dahlquist Female, 61 years Tempe, AZ First Symptom: 03/04
Dx: 10/07
XiaoTian
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
XinHua Dai member since Jan 2011
Erik
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Ventilator Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: severe
Legs: moderate
Erik Bjerre Dalum Male, 64 years Vejle, Denmark First Symptom: 04/03
Dx: 08/04
aravindan
Data Quality: 0 stars
ALS: 4 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
arvind dan First Symptom: 11/08
DannyD
Sex: M
Data Quality: 3 stars
ALS: 16 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: mild
Legs: moderate
Danny Dandignac Male, 54 years Leander, TX First Symptom: 03/97
Dx: 12/00
My New Voice
Sex: M
Data Quality: 0 stars
ALS: 6 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: none
Chest: mild
Legs: none
Robert Daniel Male, 53 years Montgomery, AL First Symptom: 11/06
Dx: 09/08
CarolD
Sex: F
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap
Bulbar: mild
Arms: mild
Chest: moderate
Legs: mild
Carol Daniels Female, 68 years Oregon City, OR First Symptom: 01/04
Dx: 06/06
gigi
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: mild
Legs: severe
Gianni Danzo Male, 56 years Lessines, Belgium First Symptom: 04/05
Dx: 10/05
smoothlines
Sex: M
Data Quality: 0 stars
ALS: 5 yrs
Feeding tube
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
John Da Ponte Male, 43 years QC, Canada First Symptom: 02/08
Dx: 03/09
happyjd1620
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: severe
JEANNETTE DARBY Female, 43 years lagrange, OH First Symptom: 06/10
Dx: 09/10
sital
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
sital datwani Male, 78 years sar, Hong Kong First Symptom: 03/10
Dx: 08/10
davi
Data Quality: 0 stars
ALS: ? yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Davi Davi member since Sep 2008
DZac
Sex: M
Data Quality: 0 stars
ALS: 22 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: none
Zac David J. Male, 52 years Adelaide, Australia First Symptom: 01/91
Dx: 12/95
noeline
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Bulbar: none
Arms: none
Chest: none
Legs: moderate
colleeen davidson Female, 69 years christchurch, New Zealand First Symptom: 08/07
Dx: 03/08
HarleyJ
Sex: M
Data Quality: 0 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: moderate
Jeff Davidson Male, 66 years La Follette, TN First Symptom: 12/08
Dx: 05/09
jackmegan1
Sex: M
Data Quality: 0 stars
ALS: 13 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
berkley davies Male, 62 years wales, United Kingdom First Symptom: 01/00
Dx: 10/00
kitkat2055
Sex: F
Data Quality: 0 stars
ALS: 5 yrs
Ventilator Wheelchair
Bulbar: mild
Arms: severe
Chest: severe
Legs: severe
Kathlean Davies Female, 43 years hamilton, ON First Symptom: 12/07
Dx: 01/09
Tank55
Sex: M
Data Quality: 0 stars
ALS: 10 yrs
Ventilator Wheelchair Feeding tube
Bulbar: moderate
Arms: severe
Chest: severe
Legs: severe
Ted Davis Male, 57 years UT, United States First Symptom: 01/03
Dx: 08/03
Merlin12
Sex: M
Data Quality: 0 stars
ALS: 1 yr
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: moderate
Legs: severe
Steve Davis Male, 53 years Sandy, UT First Symptom: 08/08
Dx: 08/09

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