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Welcome to the PatientsLikeMe Public ALS Registry

This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you have any questions about privacy or terms of service, contact PatientsLikeMe.

You can help by passing this info on to other PALS.


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 There are 1788 PALS in the registry who recently joined us.

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Newest Registry Members

Patient Status Patient Name Profile Location Diagnosis Info
Ms. Smiley
Sex: F
Data Quality: 0 stars
ALS: 1 yr
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Evelyn Maldonado Female, 52 years First Symptom: 03/10
Dx: 10/10
sherwinpaintguy
Sex: M
Data Quality: 3 stars
ALS: <1 yr
Bulbar: mild
Arms: moderate
Chest: mild
Legs: mild
Kent Ingram Male, 46 years Fort Wayne, IN First Symptom: 06/11
Dx: 11/11
mikel4golf
Sex: M
Data Quality: 0 stars
ALS: 2 yrs
Bulbar: unreported
Arms: unreported
Chest: unreported
Legs: unreported
Michael Karjala Male Belleville, MI First Symptom: 03/09
Dx: 08/09
JoAnn44
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Bulbar: none
Arms: none
Chest: none
Legs: mild
JO ANN WHITMAN Female, 61 years Grand Junction Co., CO First Symptom: 08/10
Dx: 01/11
cowboys
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Bulbar: none
Arms: none
Chest: none
Legs: none
wayne cotton Male, 44 years auckland, blockhouse bay First Symptom: 06/08
Dx: 10/11
NormEvo
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Feeding tube
Bulbar: severe
Arms: none
Chest: none
Legs: none
Norman Evans Male, 69 years Farnham, Surrey First Symptom: 12/10
Dx: 07/11
myytro
Sex: M
Data Quality: 3 stars
ALS: 3 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: mild
Mats Lassen Male, 22 years Germany First Symptom: 07/08
Dx: 10/08
glupavomomiche
Sex: F
Data Quality: 2 stars
ALS: 2 yrs
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Sarah R Female, 32 years TX, United States First Symptom: 02/10
Dx: 09/11
10000whales
Sex: M
Data Quality: 1 star
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: moderate
Chest: none
Legs: moderate
Larry Taylor Male, 62 years Seattle, WA First Symptom: 07/08
Dx: 09/09
hoyterboy
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: mild
Legs: none
Hoyt Mis Male, 43 years Medina, OH First Symptom: 11/09
Dx: 07/10
nemoslady3
Sex: F
Data Quality: 3 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Heidi Finefrock Female, 56 years Lancaster, PA First Symptom: 07/10
Dx: 10/11
Mayla
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap
Bulbar: none
Arms: none
Chest: none
Legs: moderate
Linda Allen Female, 65 years Arlington, TX First Symptom: 07/09
Dx: 08/11
Jodybo
Sex: M
Data Quality: 1 star
ALS: 1 yr
Wheelchair
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
Jim Bebb Male, 61 years Kansas City, KS First Symptom: 04/10
Dx: 01/11
iamstrong
Sex: F
Data Quality: 2 stars
ALS: <1 yr
Bulbar: none
Arms: none
Chest: none
Legs: mild
Melanie Mayo Female, 41 years jacksonville, FL First Symptom: 03/11
Dx: 06/11
Kenbo
Sex: M
Data Quality: 2 stars
ALS: <1 yr
Bulbar: mild
Arms: moderate
Chest: mild
Legs: moderate
Ken Hintz Male, 62 years Stayton, OR First Symptom: 03/11
Dx: 09/11
kiwicafe
Sex: M
Data Quality: 2 stars
ALS: 1 yr
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Richard Clark Male, 68 years Featherston, South Wairarapa First Symptom: 02/11
Dx: 09/11
tishbet
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: mild
Lizzie Sweeting Female, 51 years Toronto, Canada First Symptom: 10/09
Dx: 05/11
jadedjohn
Sex: M
Data Quality: 2 stars
ALS: 2 yrs
Bulbar: none
Arms: mild
Chest: none
Legs: moderate
john saunders Male, 43 years bridgwater, somerset UK First Symptom: 10/09
Dx: 10/10
karendinardo
Sex: F
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: none
Arms: moderate
Chest: none
Legs: mild
Karen Di Nardo Female, 73 years NJ, United States First Symptom: 03/09
Dx: 04/11
dkowalsky
Sex: F
Data Quality: 0 stars
ALS: 2 yrs
Wheelchair
Bulbar: moderate
Arms: moderate
Chest: moderate
Legs: severe
DOLORES KOWALSKY Female, 81 years First Symptom: 07/09
Dx: 03/11

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