This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you are a PALS, you can add your name by signing up for a PatientsLikeMe account and filling out your profile. If you have any questions about privacy or terms of service, email PatientsLikeMe at support@patientslikeme.com.
You can help by passing this info on to other PALS.
| Patient Status | Patient Name | Profile | Location | Diagnosis Info |
|---|---|---|---|---|
|
Artis Lestins | Type: ALS/Motor Neuron Disease | ||
|
Micah Barbeem | Type: ALS/Motor Neuron Disease | ||
|
Susan Theze | Type: ALS/Motor Neuron Disease | ||
|
Eva Brázdová | Female, 41 years | Czech RepublicOlomoucOlomouc, Czech Republic | legs onset: 04/07 Dx: 04/08 Type: ALS/Motor Neuron Disease |
|
Charlie Canon | Male, 30 years | United StatesMNBrainerdBrainerd, MN | arms onset: 01/09 Dx: 08/09 Type: ALS/Motor Neuron Disease |
|
Ann-Christin Nilsson | Female, 54 years | Swedennorrbottenbodenboden, norrbotten | bulbar onset: 06/08 Dx: 03/09 Type: PLS/Primary Lateral Sclerosis |
|
Carol Werner | Female, 55 years | United StatesCOMerinoMerino, CO | arms onset: 08/08 Dx: 03/10 Type: ALS/Motor Neuron Disease |
|
Patsy Bacon | Female, 60 years | United StatesWAVancouverVancouver, WA | bulbar onset: 08/09 Dx: 01/10 Type: ALS/Motor Neuron Disease |
|
Daniela Mazur | Female, 61 years | Polandkujawsko-pomorskieSwiecieSwiecie, kujawsko-pomorskie | legs onset: 12/06 Dx: 07/07 Type: ALS/Motor Neuron Disease |
|
Julie Stamper | Female, 49 years | United StatesVAHopewellHopewell, VA | legs onset: 01/05 Type: ALS/Motor Neuron Disease |
|
Gary Peek | Male, 51 years | AustraliaQLDBrisbaneBrisbane, QLD | arms onset: 08/07 Dx: 08/10 Type: ALS/Motor Neuron Disease |
|
Judy Dowdy | Female, 56 years | United StatesTXColleyvilleColleyville, TX | legs onset: 10/09 Dx: 05/10 Type: ALS/Motor Neuron Disease |
|
Svetlana Zolotareva | Female, 70 years | United StatesFLTamaracTamarac, FL | bulbar onset: 09/07 Dx: 06/09 Type: ALS/Motor Neuron Disease |
|
Judy Hammer | Female, 62 years | United StatesMNBrooklyn CenterBrooklyn Center, MN | legs onset: 10/08 Dx: 02/09 Type: ALS/Motor Neuron Disease |
|
Mike Jefferies | Male, 50 years | United KingdomWiltshireWestburyWestbury, Wiltshire | legs onset: 06/08 Dx: 05/09 Type: ALS/Motor Neuron Disease |
|
Beky Behrend | Female, 29 years | United StatesNYNY, United States | legs onset: 10/95 Type: PLS/Primary Lateral Sclerosis |
|
Ronald Schafferr | Male, 64 years | United StatesSCInmanInman, SC | bulbar onset: 10/03 Dx: 10/05 Type: ALS/Motor Neuron Disease |
|
Laohe1118 Cheng | Type: ALS/Motor Neuron Disease | ||
|
Allon Cady | Male, 67 years | United StatesIAPleasant hILLPleasant hILL, IA | legs onset: 09/08 Dx: 05/10 Type: ALS/Motor Neuron Disease |
|
Julie Rios | Female, 53 years | Puerto RicoFloridaFlorida , Puerto Rico | bulbar onset: 03/07 Dx: 07/07 Type: ALS/Motor Neuron Disease |

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