Welcome to the PatientsLikeMe Public ALS Registry
This is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you are a PALS, you can add your name by signing up for a PatientsLikeMe account and filling out your profile. If you have any questions about privacy or terms of service, email PatientsLikeMe at support@patientslikeme.com.
You can help by passing this info on to other PALS.
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There are 1573 PALS in the registry who recently joined us.
| Patient Status | Patient Name | Profile | Location | Diagnosis Info |
|---|---|---|---|---|
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Ian Petrie | Type: ALS/Motor Neuron Disease | ||
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Nancy Polisso | Female, 43 years | United StatesCOMountain ViewMountain View, CO | legs onset: 11/08 Dx: 05/09 Type: ALS/Motor Neuron Disease |
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Marco Giglioli | Type: ALS/Motor Neuron Disease | ||
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Bob Eilers | Male, 68 years | United StatesNVLas VegasLas Vegas, NV | legs onset: 03/07 Dx: 02/09 Type: ALS/Motor Neuron Disease |
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Salvador Cordova | Male, 49 years | MexicoPUEBLATEZIUTLANTEZIUTLAN , PUEBLA | legs onset: 09/06 Dx: 08/07 Type: ALS/Motor Neuron Disease |
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Ludmila Vrbkova | Type: ALS/Motor Neuron Disease | ||
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Julia McCullough | legs onset: 08/08 Dx: 05/09 Type: ALS/Motor Neuron Disease |
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Robert Stehlin | legs onset: 11/08 Dx: 09/09 Type: ALS/Motor Neuron Disease |
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Kelly Navan | Type: ALS/Motor Neuron Disease | ||
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Howard Gary | Male, 59 years | United StatesMEEast PolandEast Poland, ME | legs onset: 06/06 Dx: 12/09 Type: ALS/Motor Neuron Disease |
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William Horsleben | Male, 46 years | CanadaABst Albertst Albert, AB | arms onset: 04/09 Dx: 09/09 Type: ALS/Motor Neuron Disease |
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John Chavoen | Male, 61 years | United StatesFLFORT MYERSFORT MYERS, FL | legs onset: 03/08 Dx: 12/09 Type: ALS/Motor Neuron Disease |
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Edward Watts | legs onset: 02/06 Dx: 05/07 Type: ALS/Motor Neuron Disease |
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Patrice Steinhour | Female, 57 years | United StatesMIMesickMesick, MI | arms onset: 08/08 Dx: 06/09 Type: ALS/Motor Neuron Disease |
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Narges Karimi | Female, 63 years | Iran, Islamic Republic ofTehranTehranTehran, Tehran | bulbar onset: 01/08 Dx: 09/09 Type: ALS/Motor Neuron Disease |
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Morten Larsen | Male, 49 years | Denmarkcopenhagencopenhagen, Denmark | arms onset: 11/06 Dx: 03/08 Type: ALS/Motor Neuron Disease |
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Mark Kelly | Male, 30 years | United StatesAZQueen Creek Queen Creek, AZ | arms onset: 10/08 Dx: 04/09 Type: ALS/Motor Neuron Disease |
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Aaron Loder | Male, 48 years | United StatesMAMA, United States | legs onset: 04/04 Dx: 04/09 Type: ALS/Motor Neuron Disease |
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Maureen Welty | Female, 51 years | United StatesFLFL, United States | bulbar onset: 07/09 Dx: 12/09 Type: ALS/Motor Neuron Disease |
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Roy Bradley | Male, 50 years | United StatesVAVA, United States | arms onset: 08/07 Dx: 04/09 Type: ALS/Motor Neuron Disease |