The PatientsLikeMe PSP Community
Patient Spotlight
- Usernamed
- Sex: M
- Data Quality: 1 star
- PSP: 9 yrs
- Mood: Bad
- Cognition: Moderate
- Eye: Moderate
- Head: severe
- Arms: severe
- Legs: severe
- Tremors: mild
- Balance: severe
- See profile
- Usernamed
- Male, 56 years, North Miami Beach, FL
- I was originally diagnosed with PD in 9/03 and, as is common, I was re-diagnosed with PSP in 11/... See Profile…
Progressive Supranuclear Palsy (PSP) is a neurodegenerative movement disorder which mimics Parkinson’s disease, known as a "Parkinson’s Plus" syndrome. It also causes symptoms which are not normally found in Parkinson’s, such as falling over frequently, having problems concentrating, and finding it hard to control eye movements. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
78
total patients
0
Profiles
updated this week
2
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
|---|---|---|---|---|---|---|
| Age | ||||||
|
|
|
|
|
|
|
| Gender | |
| 69% | Females |
|---|---|
| 31% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Pramipexole (Mirapexin, Sifrol...) | 5 patients |
|
|---|---|---|
| Aspirin | 4 patients |
|
| Memantine (Alzant, Namenda...) | 4 patients |
|
| Carbidopa-Levodopa (Parcopa, Parkidopa...) | 3 patients |
|
| Citalopram (Cipramil, Citopam...) | 3 patients |
|
Top Symptoms
| Balance problems | 22 patients |
|
|---|---|---|
| Slowness | 22 patients |
|
| Stiffness/Spasticity | 22 patients |
|
| Problems concentrating | 21 patients |
|
| Fatigue | 20 patients |
|
Real-World Experiences
Patient Forum
- The "Applause sign" in PSP
- 2 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Charting the course of PLS and PMA
- August 11, 2009
- Rare Diseases: Well-Done Online
- July 17, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
PatientsLikeMe Research Updates
Take a minute to read recently published reports from the
PatientsLikeMe R&D team
What are others saying about PatientsLikeMe?
- Tune in to Twitter
- Find us In the News
- Read patient Testimonials