PatientsLikeMe : Pramipexole Treatment Report

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What is Pramipexole?

Pramipexole is an anti-Parkinson's agent that is used to treat symptoms of Parkinson's Disease, such as stiffness, tremors, muscle spasms, and poor muscle control and for moderate to severe primary restless legs syndrome. Off label it is used for the treatment of depression.

Reasons taken & Efficacy

Reasons and Efficacy
Reasons taken	# of patients	# of patients evaluated by
Treat Parkinson's	436	98
Stiffness/Spasticity	20	11
tremor	20	12
Other	19	3
Slowness	11	4
Mobility	7	1
Restless Legs Syndrome (RLS)	6	3
disease-related symptoms	4	1
Parkinson's Disease	3	0
Support another treatment	3	1
Don't know	3	1
General health	3	1
tremors, all limbs	2	1
Fatigue	2	0
Treat Parkinson's disease	2	1
Anxiety	2	0
Tremors	2	1
Depression	2	0
Increase on time	1	1
tremor, hand	1	1
Tremors, leg and foot	1	0
tremors in hands	1	0
Numbness, hands	1	0
Tremor, left hand, wrist and arm	1	0
Constipation	1	0
Brandykinesia	1	0
Before bed to treat RLS	1	1
Balance problems	1	0
slowness and stiffness	1	1
drug study	1	1
Dyskinesia	1	0
Insomnia	1	0

See all 32 reasons taken ▼

See all 517 patients currently taking Pramipexole

Mouse over the table for more information

Side Effects

Side effects as an overall problem

Severe	20	15%
Moderate	41	31%
Mild	37	28%
None	34	26%

Most commonly reported side effects

Drowsiness	66	50%
Weight gain	37	28%
Insomnia	28	21%
Forgetfulness	23	17%
Vivid dreams	20	15%
Nausea	16	12%
pain,depression,fatigue	12	9%
gambling urges	10	8%
Dizziness	7	5%
Visual hallucinations	7	5%
Sleepiness	3	2%
Urinary frequency	2	2%
Wheezing	1	1%
Somnolence	1	1%
Abnormal involuntary movements	1	1%
apathy, laziness	1	1%
disorganized thinking	1	1%
sweet tooth	1	1%
food binging	1	1%
sleep attacks	1	1%
Paranoia	1	1%
Sleeplessness	1	1%
compulsive behaviors	1	1%
eat all the time	1	1%
water retention	1	1%
bloating, edema, intense emotions, suspicion	1	1%
pupils dilate?	1	1%
swollen ankles	1	1%
pedal edema	1	1%
Restlessness	1	1%
compulsive shopping	1	1%
shopaholic	1	1%
fall asleep	1	1%
Edema	1	1%
loss of Consciousness during the day/jolt and hit wall,etc.	1	1%
auditory hallucinations	1	1%
Overeating	1	1%
constant activity	1	1%
Pain, feet	1	1%
daily drowsiness	1	1%
compulsive eating	1	1%
Balance problems	1	1%
leg freezeups	1	1%
Mood	1	1%
Anxiety	1	1%
obsessive behaviour	1	1%
Weight loss	1	1%
Daytime sleepiness	1	1%
extreme nausea, extreme headache	1	1%

Mild
Moderate
Severe

See all 49 reported side effects ▼

Dosages

Top 10 dosages based on patients currently taking Pramipexole. See all 62 dosages ►

0.125mg as needed	0 1mg as needed	0.25mg as needed	0.5 mg all the time (24/7)	0.5mg as needed	1.5 mg all the time (24/7)	1.5mg as needed	3 0.125mg as needed	3 1mg as needed	daily	0.025 mg daily	0.125 mg daily	0.15 mg daily	0.18 mg daily	0.25 mg daily	0.3 mg daily	0.3125 mg daily	0.375 mg daily	0.5 daily	0.5 mg daily	0.72 mg daily	0.75 mg daily	0.875 mg daily	1 daily	1 mg daily	1.08 mg daily	1.25 mg daily	1.5 daily	1.5 mg daily	1.75 mg daily	2 mg daily	2.1 mg daily	2.25 mg daily	2.46 mcg daily	2.5 mg daily	2.8 mg daily	3 daily	3 mg daily	3.25 mg daily	3.5 mg daily	3.75 daily	3.75 mg daily	4 mg daily	4.25 mg daily	4.5 mg daily	5 mg daily	6 mg daily	6.5 mg daily	7.5 mg daily	9 mg daily	20 mg daily	25 mg daily	50 daily	75 mg daily	100 mg daily	200 daily	200 other daily	225 mg daily	300 mg daily	500 mg daily	750 mg daily	3000 mg daily
1	1	1	1	1	1	1	1	1	9	1	12	1	1	13	1	1	22	1	18	1	27	2	1	29	1	2	1	79	2	17	2	21	1	8	1	1	91	1	2	1	2	20	1	73	6	18	1	1	2	1	2	1	2	1	1	1	1	1	1	1	1

Stop Reasons

Why Patients Stopped Taking Pramipexole (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	77	52%
Doctor's advice	40	27%
Did not seem to work	37	25%
Other	18	12%
Not indicated	13	9%
Expense	5	3%
Course of treatment ended	4	3%
Personal research	3	2%

See all 141 patients who’ve stopped taking Pramipexole

Duration See details about how long patients take this treatment ▼

Currently Taking Pramipexole

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	10	15	41	67	131

Stopped Taking Pramipexole

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
9	16	20	30	32	36

Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Always	87	66%
Usually	41	31%
Sometimes	1	1%
Never	3	2%

Burden

Difficulty being on treatment

Very	9	7%
Somewhat	28	21%
A little	37	28%
Not at all	58	44%

Cost

Paid out of pocket

$200+	3	2%
$100-199	6	5%
$50-99	12	9%
$25-49	15	11%
< $25	46	35%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 132 patient evaluations

planton

Sex: M

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

See profile
planton

daily

since Aug 18, 2008
Efficacy Moderate for Treat Parkinson's
Side Effects Mild
See full evaluation

jntdsn

Sex: F

Mouth/throat: mild

Arms: moderate

Chest: mild

Legs: mild

See profile
jntdsn

0.125 mg daily

since Aug 18, 2008
Efficacy Major for Treat Parkinson's
Side Effects None
See full evaluation

dixie pixie

Sex: F

Mouth/throat: mild

Arms: mild

Chest: mild

Legs: mild

See profile
dixie pixie

1.5 mg daily

since Jul 28, 2008
Efficacy Major for Treat Parkinson's
Side Effects None
Advice/Tips IF YOU SHOULD FEEL THA YOUCANNOT STOP ANY COMPULSIVE BEHAVIOR ,PLEASE GO IMMEDIATLY TO YUOR DOCTOR AND TELL HIM.. IT IS BETTER TO BE PUT ON A VERY LOW DOSE... See full evaluation

See all 132 patient evaluations

Forum

See 38 topics tagged with Mirapex

See 2 topics tagged with Pramipexole

There are 1868 posts in our forum about Pramipexole. Join now and see what people are saying.

Report created on November 20, 2009.

0.125mg as needed	0 1mg as needed	0.25mg as needed	0.5 mg all the time (24/7)	0.5mg as needed	1.5 mg all the time (24/7)	1.5mg as needed	3 0.125mg as needed	3 1mg as needed	daily	0.025 mg daily	0.125 mg daily	0.15 mg daily	0.18 mg daily	0.25 mg daily	0.3 mg daily	0.3125 mg daily	0.375 mg daily	0.5 daily	0.5 mg daily	0.72 mg daily	0.75 mg daily	0.875 mg daily	1 daily	1 mg daily	1.08 mg daily	1.25 mg daily	1.5 daily	1.5 mg daily	1.75 mg daily	2 mg daily	2.1 mg daily	2.25 mg daily	2.46 mcg daily	2.5 mg daily	2.8 mg daily	3 daily	3 mg daily	3.25 mg daily	3.5 mg daily	3.75 daily	3.75 mg daily	4 mg daily	4.25 mg daily	4.5 mg daily	5 mg daily	6 mg daily	6.5 mg daily	7.5 mg daily	9 mg daily	20 mg daily	25 mg daily	50 daily	75 mg daily	100 mg daily	200 daily	200 other daily	225 mg daily	300 mg daily	500 mg daily	750 mg daily	3000 mg daily
1	1	1	1	1	1	1	1	1	9	1	12	1	1	13	1	1	22	1	18	1	27	2	1	29	1	2	1	79	2	17	2	21	1	8	1	1	91	1	2	1	2	20	1	73	6	18	1	1	2	1	2	1	2	1	1	1	1	1	1	1	1

0.125mg as needed	0 1mg as needed	0.25mg as needed	0.5 mg all the time (24/7)	0.5mg as needed	1.5 mg all the time (24/7)	1.5mg as needed	3 0.125mg as needed	3 1mg as needed	daily	0.025 mg daily	0.125 mg daily	0.15 mg daily	0.18 mg daily	0.25 mg daily	0.3 mg daily	0.3125 mg daily	0.375 mg daily	0.5 daily	0.5 mg daily	0.72 mg daily	0.75 mg daily	0.875 mg daily	1 daily	1 mg daily	1.08 mg daily	1.25 mg daily	1.5 daily	1.5 mg daily	1.75 mg daily	2 mg daily	2.1 mg daily	2.25 mg daily	2.46 mcg daily	2.5 mg daily	2.8 mg daily	3 daily	3 mg daily	3.25 mg daily	3.5 mg daily	3.75 daily	3.75 mg daily	4 mg daily	4.25 mg daily	4.5 mg daily	5 mg daily	6 mg daily	6.5 mg daily	7.5 mg daily	9 mg daily	20 mg daily	25 mg daily	50 daily	75 mg daily	100 mg daily	200 daily	200 other daily	225 mg daily	300 mg daily	500 mg daily	750 mg daily	3000 mg daily
1	1	1	1	1	1	1	1	1	9	1	12	1	1	13	1	1	22	1	18	1	27	2	1	29	1	2	1	79	2	17	2	21	1	8	1	1	91	1	2	1	2	20	1	73	6	18	1	1	2	1	2	1	2	1	1	1	1	1	1	1	1

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Pramipexole Treatment Report