The PatientsLikeMe Parkinson's Disease Community
Patient Spotlight
- jbphotonut
- Sex: F
- Data Quality: 2 stars
- PD: 4 yrs
- Hoehn-Yahr 3
- Mouth/throat: mild
- Arms: moderate
- Chest: mild
- Legs: mild
- See profile
- jbphotonut
- Female, 48 years, Oblong, IL
- Nature Lover and wildlife enthusiast. Mother to a 26 year old and a 3 year old. Diagnosed with PD... See Profile…
Parkinson’s disease affects approximately 2% of people over the age of 65. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
4,286
total patients
160
Profiles
updated this week
102
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Gender | |
| 49% | Females |
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| 51% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Carbidopa-Levodopa (Parcopa, Parkidopa...) | 995 patients |
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|---|---|---|
| Ropinirole (Requip, Requip Depot...) | 518 patients |
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| Pramipexole (Mirapexin, Sifrol...) | 517 patients |
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| Rasagiline (Agilect, Azilect) | 502 patients |
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| CoQ10 | 365 patients |
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Top Symptoms
| Stiffness/Spasticity | 2022 patients |
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|---|---|---|
| Slowness | 2002 patients |
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| Fatigue | 1970 patients |
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| Excessive daytime sleepiness (somnolence) | 1612 patients |
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| Insomnia | 1592 patients |
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Real-World Experiences
Patient Forum
- Latest information on the effectiveness of COQ10 from Rush University Medical Center
- 795 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- New Parkinson’s Genetics Engine to Enhance Research Through Shared Data
- August 20, 2009
- Sharing Is A Right As Well
- June 11, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
I presented her [neurologist] with the PLM printout so all my meds, symptoms & progression were there and she loved it. Communication was so much easier.
- Parkinson's Patient
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