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PatientsLikeMe Newsletter Issue 29 - May 2013
The language of health
"When we share a language we're able to communicate with others and participate in our community. We have no lack of standardized vocabulary for clinical terms, but we have no vocabulary of the words that are used by patients to describe their illness, their experiences and what it means to them everyday. We need to change that. Let's humanize the language of health with the language and lexicon of patients."Sally Okun RN, Vice President for Advocacy, Policy and Patient Safety

It's no secret that here at PatientsLikeMe, we think that the voice of the patient, your voice, is the number one way to drive medical advancements. Last month at TEDMED 2013, your very own Sally Okun shared that message on one of the world's largest stages. She asked the audience a very simple question. "Does anyone in healthcare want to be understood?" See Sally's answer.
Have a question or comment? Don't forget your Community Team is here for you.
Emma, Jeanette, Liz, Molly, Sarah & Sharry.
What's everyone talking about?
Mental Health and Behavior Thread: Identity Crisis...losing yourself to bipolar
Epilepsy Thread: Seizure in public
HIV/AIDS Thread: Melatonin, side effects and efficacy
ALS/MND Thread: Diaphragm pacing system, experiences & questions
Diabetes Type 1 Thread: Insulin pump, "I love it."
Alkaptonuria Thread: Recipes for low protein diet
PatientsLikeMe Thread: How do you explain chronic illness in a positive way?
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Jun 2010
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May 2010
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Apr 2010
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Mar 2010
- ALS Issue 33
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Feb 2010
- ALS Issue 32
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