The PatientsLikeMe Multiple Sclerosis Community
Patient Spotlight
- Diamondlil58
- Sex: F
- Data Quality: 3 stars
- MS: 12 yrs
- Relapsing-Remitting
- Sensation: Moderate
- Overall: Mild
- Cognition: mild
- Vision: mild
- Speech: mild
- Swallowing: mild
- Upper limb: mild
- Walking: mild
- See profile
- Diamondlil58
- Female, 51 years, Lynnwood, WA
- I've been married 21-1/2 years to a wonderful, supportive man. We have a 20 year old daughter. I ... See Profile…
Multiple Sclerosis is a lifelong chronic condition that affects 2.5 million people worldwide. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
14,819
total patients
497
Profiles
updated this week
401
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Gender | |
| 80% | Females |
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| 20% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Glatiramer acetate (Copaxone) | 1993 patients |
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|---|---|---|
| Baclofen (Lioresal Oral, Onelaxant R...) | 1471 patients |
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| Handicapped parking permit | 1385 patients |
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| Walking Stick/Cane | 1285 patients |
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| Interferon beta-1a SubQ injection (Rebif) | 1140 patients |
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Top Symptoms
| Fatigue | 9048 patients |
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|---|---|---|
| Stiffness/Spasticity | 8173 patients |
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| Brain fog | 7603 patients |
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| Pain | 7442 patients |
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| Excessive daytime sleepiness (somnolence) | 7130 patients |
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Real-World Experiences
Patient Forum
- Research on the blood-brain barrier in MS
- 3016 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- MS Patients Stepping into the Real-World
- August 13, 2009
- Sharing Is A Right As Well
- June 11, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
For years, I had always taken just 10mg of Baclofen. I was told long ago by my neuro that "too much Baclofen can cause weak legs."...Then: I sign up here. Take a peak at what you guys are doing, and find out I don’t take enough Baclofen to deal with my symptoms. Give the neuro a call, no problem, and much, much better.
- MS Patient
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