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- MS
The PatientsLikeMe Multiple Sclerosis Community
Patient Spotlight
- TysabriSept08
- Sex: F
- Data Quality: 3 stars
- MS: 27 yrs
- Secondary Progressive
- Sensation: Moderate
- Overall: Mild
- Cognition: none
- Vision: none
- Speech: none
- Swallowing: none
- Upper limb: moderate
- Walking: moderate
- See profile
- TysabriSept08
- Female, 63 years, New York, NY
- I'm bloody-minded about keeping my independence; living alone, doing for myself (ok, some help in... See Profile…
Multiple Sclerosis is a lifelong chronic condition that affects 2.5 million people worldwide. Imagine knowing what treatments work for people just like you — and having the ability to easily connect with those people. That’s what makes PatientsLikeMe different. By sharing your symptoms, treatments and more, you can gain insight into what affects your condition while helping others learn from your experiences. Together, we can achieve more. Begin making a difference today!
Who Will You Find?
15,876
total patients
429
Profiles
updated this week
501
New
patients
this month
| <20 | 20- 29 | 30- 39 | 40- 49 | 50- 59 | 60- 69 | 70+ |
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| Age | ||||||
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| Gender | |
| 80% | Females |
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| 20% | Males |
What Are Patients Sharing?
Real-World Data
Top Treatments
| Glatiramer acetate (Copaxone) | 2139 patients |
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|---|---|---|
| Baclofen (Lioresal Oral, Onelaxant R...) | 1571 patients |
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| Handicapped parking permit | 1413 patients |
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| Walking Stick/Cane | 1309 patients |
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| Interferon beta-1a SubQ injection (Rebif) | 1230 patients |
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Top Symptoms
| Fatigue | 9694 patients |
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|---|---|---|
| Stiffness/Spasticity | 8785 patients |
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| Brain fog | 8145 patients |
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| Pain | 7986 patients |
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| Excessive daytime sleepiness (somnolence) | 7640 patients |
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Real-World Experiences
Patient Forum
- What do I need to know that no one will tell me about Tysabri?
- 3645 new posts in the forum this week
PatientsLikeMe Blog: The Value of Openness
- Exciting New Profile Chart Upgrades in ALS Community
- January 20, 2010
- A Year in Review: PatientsLikeMe in 2009
- December 31, 2009
- More…
What Can You Learn?
Your Health Profile
By creating and sharing your health profile with the community, you can learn more about how your condition affects you and help others learn from your experience.
Patient Learning in Action
For years, I had always taken just 10mg of Baclofen. I was told long ago by my neuro that "too much Baclofen can cause weak legs."...Then: I sign up here. Take a peak at what you guys are doing, and find out I don’t take enough Baclofen to deal with my symptoms. Give the neuro a call, no problem, and much, much better.
- MS Patient
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