204-full
Neurotomy
Sex: M
Data Quality: 0 stars
ALS: 9 yrs
Bi-Pap Wheelchair
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
Neurotomy
Male, 31 years
Cecilia, KY
Primary Condition
ALS and 1 more ▼
First symptom
Diagnosis
See more
  1. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Stopped: Riluzole

    • Stopped: Feb 1, 2005
    • Reason: Side effects too severe
    stopped taking the treatment Riluzole Dec 17, 2011
  2. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    120 lb BMI: 15.4

    updated his weight for Dec 17, 2011 Dec 17, 2011
  3. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Fiber supplement Treatment Evaluation

    • Perceived effectiveness for Constipation: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: MildMildMildMildMild
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Cost
    < $25 monthly
    added a treatment evaluation for Fiber supplement from Jan 1, 2008 Dec 17, 2011
  4. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Stopped: Fiber supplement

    • Stopped: Jan 1, 2008
    • Reason: Did not seem to work
    stopped taking the treatment Fiber supplement Dec 17, 2011
  5. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    FRS: 4

    • severe Head
    • severe Arms
    • moderate Torso
    • severe Legs
    completed the FRS survey for Dec 17, 2011 Dec 17, 2011
  6. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Riluzole

      • Stopped: Feb 01, 2005
      • Reason: Side effects too severe
      • Started: Nov 30, 2004
      • Last Dosage: 50 mg daily
    • Purpose: ALS
    updated the treatment Riluzole Dec 17, 2011
    • Added
      • Started: Nov 30, 2004
      • Dosage: 50 mg daily
      • Purpose: ALS (Amyotrophic Lateral Sclerosis)
      • Nov 30, 2004
    • Stopped
      • Date: Feb 01, 2005
      • Reason: Side effects too severe
      • Feb 01, 2005
  7. 204-thumb
    Neurotomy
    Sex: M
    Data Quality: 0 stars
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Mitochondrial Myopathy

    • First symptom:
    • Diagnosis:
    updated the condition Mitochondrial Myopathy Dec 17, 2011