sailboatfun's Journal

sailboatfun: Sex: F; Data Quality: 2 stars; MS: 37 yrs; Type: Secondary Progressive; Sensation: Moderate; Overall: Moderate; Cognition: moderate; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: severe

sailboatfun: Female, 59 years; Burlington, WI

Primary Condition: MS and 1 more ▼
Type: Secondary Progressive
First symptom: Jan 1975
Diagnosis: Oct 1980

2 stars
sailboatfun lost a star • Apr 07, 2012
Nice work! One more star and you get a PLM t-shirt!
InstantMe

Bad
sailboatfun added an InstantMe for Jan 8, 2012 • Jan 08, 2012 12:16PM

Bladder infection AGAIN. Eyes are getting worse. No energy or muscles.
Tired of burning stinging pain.

What's making you feel bad?
Updated outcome

QOL
- Bad Social
- Bad Mental
- Bad Physical
sailboatfun completed the QOL survey for Jan 8, 2012 • Jan 08, 2012
Your Quality of Life is improving! What sort of things are making it better?
Stopped treatment

Hospitalization-Overdose Attempt
- Stopped: Dec 1, 2011
- Reason: Felt finished with this treatment
sailboatfun stopped taking the treatment Hospitalization-Overdose Attempt • Jan 08, 2012
What else would you like to share about stopping this treatment?
Stopped treatment

Mitoxantrone
- Stopped: Feb 15, 2009
- Reason: Doctor's advice
sailboatfun stopped taking the treatment Mitoxantrone • Jan 08, 2012
What else would you like to share about stopping this treatment?
MSRS

75
- Mild Cognition
- Moderate Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Total Disability Walking
- Moderate Sensation
sailboatfun completed the MSRS survey for Jan 8, 2012 • Jan 08, 2012
What sort of things are making your MS symptoms worse?
Weight

165 lb

BMI

28.3
sailboatfun updated heryour weight for Jan 8, 2012 • Jan 08, 2012
Is there anything in particular that influenced this weight increase?
Added treatment

Avoid milk products
- Started: Jan 1, 2012
- Dosage: as needed
- Purpose: Allergies
sailboatfun added the treatment Avoid milk products • Jan 08, 2012
What else would you like to share about this treatment?
Added

Symptom Update
- mild Allergies
- severe Weakness in legs
- severe Imbalance when walking
- moderate Bruising
- severe Back pain
- mild Injection site itching
- moderate Fever
- moderate Eye pain
- severe Cold feet
- severe Balance problems
- severe Numbness
- moderate Low Self-Esteem, Feeling Worthless, Unimportant
- moderate Dizziness
- moderate Cough
- severe Brain lesions
- severe Walking problems
- severe Urinary problems
- mild Suicidal
- severe Heat intolerance
- mild Emotional lability
- moderate Burning sensation
- mild Anxious mood
- mild I was freaking out and wanted to kill myself bad
- severe Heavy sensation in legs
- moderate Headaches
- moderate Feel lousy
- severe Fatigue
- moderate Excessive daytime sleepiness (somnolence)
- severe Acid reflux
- severe Pain
- moderate MS hug (tight chest or torso)
- moderate Mood swings
- mild Lose train of thought
- mild Injection site pain
- severe High Cholesterol
- severe Blurry vision
- moderate Word fishing
- moderate Weight gain
- severe Stomach pain
- severe Stiffness/Spasticity
- moderate Sexual dysfunction
- moderate Flu like symptoms
- severe Dry mouth (xerostomia)
- severe Numbness and Tingling with Pins and Needles
- moderate Muscle twitching (fasciculations)
- mild Injection site reaction
- moderate Elevated blood pressure
- mild Depressed mood
- moderate Bowel problems
- moderate Anemia
- mild Unsure about effectiveness
- severe Spasms
- severe Muscle cramps
- mild don"t care about anything
- mild Diarrhea
- mild Brain fog
- severe Bladder problems
- moderate Awakening due to pain
- mild Insomnia
- severe Muscle spasms
- mild Low oxygen saturation while sleeping
- mild Elevated liver enzymes
- moderate Difficulty sleeping through night
- moderate Cramps in calf muscles
- moderate Buzzing vibration sensation
- See more
sailboatfun updated heryour symptoms for Jan 8, 2012 • Jan 08, 2012
What else would you like to share about these symptoms?
Added treatment

Mesalamine
- Started: Sep 15, 2010
- Dosage: 0.375 g daily
- Purpose: Crohn's Disease
sailboatfun added the treatment Mesalamine • Jan 08, 2012
What else would you like to share about this treatment?
3 stars
sailboatfun earned a star! • Jan 08, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
sailboatfun lost a star • Dec 17, 2011
Nice work! One more star and you get a PLM t-shirt!
Added condition

Crohn's Disease
- First symptom: ?
- Diagnosis: ?
sailboatfun added the condition Crohn's Disease • Nov 02, 2011
What else would you like to share about 'Crohn's Disease'?
InstantMe

Bad
sailboatfun added an InstantMe for Oct 7, 2011 • Oct 07, 2011 9:46AM

My body is holding me hostage

What's making you feel bad?

PatientsLikeMe ™

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