I have several medical conditions going on, however, the primary biliary cirrhosis is the potentially life-threatening concern for me. I would like to connect with others who are living with this condition. I am also interested in new treatments and information about the disease.
My primary symptom is fatigue. I also have fibromyalgia, so it's difficult to know which is affecting me more.
I recently read that women of Northern European descent have a higher rate of this disease. I am American, but have a large amount of Finnish "blood". I'm curious about the heritage of others afflicted with this disease.
I have had to stop treatment (Ursodiol), due to my lack of insurance (none offered at work) and ability to afford the medication. Any ideas or advise in the area of ways to obtain treatment are appreciated.
Wishing everyone the best.