1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 46
    • Aware of symptoms but no functional disability Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Mild disability but not requiring help from others Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation

    I am no long working (trying to work - do real estate, IT, or whatever). I am taking the stress off of my self and only doing what I WANT to do. I am pursuing musical endeavors which make me a lot happier. Singing, Ukulele, back to snare drumming. I am also looking into starting Tai Chi.

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated her weight

    Started Weight Watchers, did some activity and took Provigil.

  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:

    Just spent a week at a VA SCI clinic in Tampa. They were awesome. They confirmed I have SPMS (after years of RRMS). I never really have exacerbations any more just more nagging stuff that just gets a little worse over time.

  4. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl was feeling very good

    Taking control of my weight and activity and making the best of it.

  5. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl was feeling very good

    Feeling motivated for a new start and losing weight and getting in shape. Back on Provigil too.

  6. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl became a 3 star data donor! star earnedstar earnedstar earned

  7. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated her bio

    I am a retired woman with a SPMS, Fibromyalgia, Endometriosis, Keratoconus and Hashimoto's Thyroiditis. I worked with GE Global Research in IT. I'm a classic computer geek. I love music, pistol shooting, and playing on my computer. I moved to Sarasota, FL in May 14 and am so happy here. We have beaches and baseball ... two things I love. 

    I'm a doer, a go-getter and Type A to a fault. I loved my career in IT and enjoyed climbing the corporate ladder. I thrived on the stress. I love learning.   Currently I sing in a choir (Alto) in the Diversity: Voices of Sarasota group, and am also standby percussion for the Sarasota Pops.  I'm also trying to learn how to play Celtic snare drum again with a group and am learning the Ukulele and playing that.  Keeping my mind and life active.  Am also looking into taking and learning Tai Chi.

    I live my life with my wife Cecilia who is the love of my life and supports me in everything I do and choose to do. I couldn't ask for anything more.

  8. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl completed the QOL survey

  9. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated her weight

  10. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl started taking Modafinil again

    Dosage100 mg daily (restarted )
  11. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated her symptoms

    decrease better BetterBalance problems, Brain fog, Depressed mood, Excessive daytime sleepiness (somnolence), Headaches See more
    increase worse WorseBowel problems, Chest tightness, Dizziness (vertigo), Drowsy in a.m., Joint pain See more
    moderate ModerateLoss of sensation in lower legs
  12. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated her weight

  13. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl updated the condition Osteopenia

    • First symptom: ?
    • Diagnosis:

    Most recent DXA scan - bone density - shows Osteopenia. Going to try to treat with calcium, diet and weight bearing exercise.

  14. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl was feeling neutral

    Emotional. Back into retirement after trying to work unsuccessfully. I tried. No go.

  15. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl completed the QOL survey for

  16. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl completed the MSRS survey for

    • MSRS: 64
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Mild disability but not requiring help from others Speech
    • Moderate disability that requires some help from others Swallowing
    • Moderate disability that requires some help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation
  17. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl was feeling good

    Just relaxing. Having Copaxone reactions ....

  18. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl added a treatment evaluation for Copaxone

    • Perceived effectiveness for Multiple Sclerosis: Can’t tell
    • Side Effects: Severe
    • Adherence: Usually
    • Burden: Very
    • Dosage: 20 mg Daily
    • Advice & Tips: This round of Copaxone has not been good for me. I have now developed large, itchy welts that are still present over 5 days later with no sign of going away. I am concerned about cellulitis and my risk for that. This drug is not worth the hassle for me.
    • Cost: < $25 monthly
    This round of Copaxone has not been good for me. I have now developed large, itchy welts that are still present over 5 days later with no sign of going away. I am concerned about cellulitis and my risk for that. This drug is not worth the hassle for me.
  19. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl stopped taking Copaxone

    ReasonsSide effects too severe
  20. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Mild
    Cognition: mild
    Vision: moderate
    Speech: mild
    Swallowing: moderate
    Upper limb: mild
    Walking: moderate
    I am: vg
    I have:
    MS

    gkygrl added a treatment evaluation for Copaxone

    • Perceived effectiveness for Multiple Sclerosis: Can’t tell
    • Side Effects: Moderate
    • Adherence: Usually
    • Burden: Somewhat
    • Dosage: 20 mg Daily
    • Advice & Tips: I have started Copaxone again and am now getting large, itchy welts (like a large mosquito bite that have lasted almost 48 hours). Feels more like an allergic reaction of some type????
    • Cost: < $25 monthly
    I have started Copaxone again and am now getting large, itchy welts (like a large mosquito bite that have lasted almost 48 hours). Feels more like an allergic reaction of some type????
  21. Show more