1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was feeling neutral

    Tired, feel like I have a cold or something.

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 57
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Mild disability but not requiring help from others Speech
    • Mild disability but not requiring help from others Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation
  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 50
    • Mild disability but not requiring help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Moderate disability that requires some help from others Walking
    • Moderate disability that requires some help from others Sensation

    Leg spasms, left side ... leg weakness, fatigue.

  4. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her profile picture

  5. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her bio

    I am a retired woman with a SPMS, Fibromyalgia, Endometriosis, Keratoconus and Hashimoto's Thyroiditis. I worked with GE Global Research in IT. I'm a classic computer geek. I love music, doing adaptive sports (Air Rifle) with my Team Albany Adaptive Sports team (Disabled Veterans) and playing on my computer. I have recently done something I always wanted to do - go through EMT school and become a volunteer EMT. I work short little shifts around my health. It's great to help others out.

    I'm a doer, a go-getter and Type A to a fault. I loved my career in IT and enjoyed climbing the corporate ladder. I thrived on the stress. I love learning.

    I got my real estate license in Florida and that has been fun.  I am finding it challenging though (as my health declines a bit) but will do my best with it.

    I live my life with my wife Cecilia who is the love of my life and supports me in everything I do and choose to do. I couldn't ask for anything more.

  6. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:

    Just spent a week at a VA SCI clinic in Tampa. They were awesome. They confirmed I have SPMS (after years of RRMS). I never really have exacerbations any more just more nagging stuff that just gets a little worse over time.

  7. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her symptoms

    Dizziness (vertigo) BetterDizziness (vertigo), Dry eyes, Flank pain, Joint pain in legs, Kidney pain left See more
    Agitation with restlessness WorseAgitation with restlessness, Balance problems, Bowel problems, Cough, Depressed mood See more
  8. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her basic information

  9. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl earned a star! star earnedstar earnedstar earned

  10. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated the condition Osteopenia

    • First symptom: ?
    • Diagnosis:

    Most recent DXA scan - bone density - shows Osteopenia. Going to try to treat with calcium, diet and weight bearing exercise.

  11. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated the condition Asthma

    • First symptom:
    • Diagnosis:
  12. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was feeling good

    I have a very good medical team now with more answers and all the help that I need.

  13. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

  14. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 42
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Mild disability but not requiring help from others Walking
    • Mild disability but not requiring help from others Sensation
  15. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl updated her weight

  16. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl shared details about mometasone

    Stopped
  17. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl started taking Copaxone again

    Dosage20 mg daily (restarted )
  18. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl was in the hospital for Multiple Sclerosis

    Dates
    -
  19. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl shared details about Glucosamine-Chondroitin-MSM

    Stopped
  20. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: n
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 57
    • Moderate disability that requires some help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Mild disability but not requiring help from others Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Moderate disability that requires some help from others Walking
    • Moderate disability that requires some help from others Sensation

    I have a UTI at the moment. Just moved from NYS to Sarasota, FL. Have not been good about self-cathing and have been relying on my own ability to empty which is not very good. Limited walking which SUCKS!

  21. Show more