1. 5514-thumb
    papaw perry
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: g
    I have:
    ALS
  2. 5514-thumb
    papaw perry
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: g
    I have:
    ALS

    stomach tore up

  3. 5514-thumb
    papaw perry
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: g
    I have:
    ALS

    papaw perry updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  4. 5514-thumb
    papaw perry
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: g
    I have:
    ALS
    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      star earnedstar earnedstar not earned papaw perry lost a star

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      thigh and hip are hurting from cramps and spasums

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      Hip and thigh are cramping and sore from spasms

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      My thighs are spasms and cramps. I'm scheduled for Botox injections into my thighs the day before Thanksgiving

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      spasms in my thighs and hips

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      papaw perry added a new Forced Vital Capacity Percentage value

      • Forced Vital Capacity Percentage: 52 %
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      papaw perry completed the QOL survey

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      papaw perry updated his weight

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      papaw perry completed the FRS survey

      • FRS: 22
      • mild Head
      • moderate Arms
      • mild Torso
      • moderate Legs
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      star earnedstar earnedstar earned papaw perry earned a star!

    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      papaw perry updated his symptoms

      Bladder problems BetterBladder problems, Bulbar symptoms, Difficulty speaking (dysarthria), Elevated blood pressure, Endurance reduced (whole body) See more
      Atrophy of forearm muscles WorseAtrophy of forearm muscles, Atrophy of hand muscles, Bowel problems, Cramps, Cramps in legs See more
    • 5514-thumb
      papaw perry
      Sex: M
      Data Quality: 2 stars
      Bulbar: mild
      Arms: moderate
      Chest: mild
      Legs: moderate
      I am: g
      I have:
      ALS

      star earnedstar earnedstar not earned papaw perry lost a star

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