1. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  2. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry completed the FRS survey

    • FRS: 23
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  3. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry completed the QOL survey

  4. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry updated his basic information

  5. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS
  6. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  7. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS
    I'm papaw perry, 73  years old. I had a EMG Test done 4 Dec 2008 and was diagnosed with ALS and thought I had a slow Progression type. Had a EMG Test done 18 March 2010 showed worse.I'm under the care of the VA in Athens and Augusta, Ga. I must use a walker and wheel-chair. My balance is bad and my muscles are deteriorating. My speech is slurred and is slowly getting worse.I have spastisity in my legs ,arms, hands and shoulder's. I had to retire on disability Aug-07. My legs have cramped and spasticity mostly of the night since I came back from Vietnam in Jan. 68.

    I'm a retired, disability since Aug. 2006. My problems were first in my speech. It sounded slurred and as though I was speaking through my nose. My balance was next, I would drag my toe of my booth or shoe and would stumble. This started in 2000 and I began seeing a doctor. I was working in Augusta, Ga. and started seeing the doctors in Augusta Medical Center. I starting going to the VA which is in the same area. I live in Loganville, Ga. and transferred my Primary Care to Athens VA but I still see the neuro in Augusta the new facility in Athens is strictly Primary Care. I use a walker and wheel-chair. My balance is bad and will fall when not holding.My wife is a big help. She keeps my medicine straight and is my driver. My wife helps me with getting dressed. She prepares my food and uses a blender to help with not getting choked. I drink through a straw to help with not strangling myself.I beat Polio when I was ( 9 years old and I hope to beat this ALS. My legs have cramped and spasticity mostly of the night when in bed. They have hurt since Jan. 1968, when I came back from Vietnam. I believe the Agent-Orange was why I've got ALS. I was approved for a wheel-chair by the VA, and received it. I've had a appointment at the ALS Clinic in August, Ga. 1st week of June 09, and the Neurologist said he would work with my Neurologist at the VA. Scheduled to have lungs checked 24 Mar.2010. VA has been good to me with service's and I'm thankful for thier service.I'm using the Bi-Pap machine of the night and it's hard to get use to. I have a cough assist machine to use during the day as needed.

  8. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  9. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry completed the FRS survey

    • FRS: 23
    • mild Head
    • mild Arms
    • mild Torso
    • moderate Legs
  10. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry updated his weight

  11. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry updated his symptoms

    Bowel problems BetterBowel problems, Cramps, Cramps in legs, Muscle spasms
    Anxious mood WorseAnxious mood, Bladder problems, Bulbar symptoms, Constipation, Difficulty speaking (dysarthria) See more
  12. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  13. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  14. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  15. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry earned a star! star earnedstar earnedstar earned

  16. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  17. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  18. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  19. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  20. 5514 thumb
    papaw perry
    Sex: M
    Data Quality: 3 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    papaw perry was feeling neutral

  21. Show more