papaw perry's Journal

papaw perry: Sex: M; Data Quality: 2 stars; ALS: 44 yrs; Bi-Pap; Bulbar: moderate; Arms: moderate; Chest: moderate; Legs: moderate

papaw perry: Male, 70 years; Loganville, GA

Primary Condition: ALS
First symptom: Jan 1968
Diagnosis: Dec 2008

2 stars
papaw perry lost a star • Apr 01, 2012
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Added

Symptom Update
- moderate Muscle spasms
- moderate Urinary urgency
- moderate Swelling in ankles
- moderate Hyperreflexia
papaw perry updated hisyour symptoms for Mar 23, 2012 • Mar 23, 2012
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New evaluation

Baclofen Trial Treatment Evaluation
- Efficacy for Spasticity: Moderate
- Side Effects: Mild
- Adherence: Always
- Burden: A little
papaw perry added a treatment evaluation for Baclofen Trial • Feb 23, 2012
Stopped treatment

Feeding Tube
- Stopped: Jan 15, 2012
- Reason: Other
papaw perry stopped taking the treatment Feeding Tube • Jan 22, 2012
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Added

Symptom Update
- moderate Stiffness/Spasticity
papaw perry updated hisyour symptoms for Jan 24, 2012 • Jan 24, 2012
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Added treatment

Baclofen
- Started: Sep 19, 2011
- Dosage: 30 mg daily
- Purpose: Muscle spasms and Stiffness/Spasticity
papaw perry added the treatment Baclofen • Jan 24, 2012
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Added treatment

Baclofen Trial
- Started: Sep 19, 2011
- Dosage: daily
- Purpose: Spasticity
papaw perry added the treatment Baclofen Trial • Jan 24, 2012
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Added treatment

Feeding Tube
- Started: Jan 15, 2012
- Dosage: as needed
- Purpose: ALS (Amyotrophic Lateral Sclerosis)
papaw perry added the treatment Feeding Tube • Jan 22, 2012
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InstantMe

Neutral
papaw perry added an InstantMe for Jan 2, 2012 • Jan 02, 2012 2:24AM

breathing is not good, wheezing alot

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Weight

210 lb

BMI

31.0
papaw perry updated hisyour weight for Jan 2, 2012 • Jan 02, 2012
Is there anything in particular that influenced this weight increase?
FRS

19
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
papaw perry completed the FRS survey for Jan 2, 2012 • Jan 02, 2012
What sort of things are making your ALS symptoms worse?
Added

Symptom Update
- moderate Fatigue
- moderate Cramps in legs
- moderate Bladder problems
- mild Pain
- moderate Cramps
- moderate Atrophy of forearm muscles
- moderate Stiffness/Spasticity
- moderate Loss of manual dexterity
- mild Hyperreflexia
- moderate Fasciculations
- mild Excessive yawning
- moderate Weakness in legs
- moderate Difficulty turning over or moving in bed
- mild Depressed mood
- moderate Urinary urgency
- none Constipation
- moderate Swelling in feet
- mild Insomnia
- moderate Endurance reduced (whole body)
- moderate Difficulty speaking (dysarthria)
- mild Swollen prostate
- moderate Swelling in ankles
- moderate Bulbar symptoms
- moderate Atrophy of hand muscles
- mild High Cholesterol
- moderate Excess saliva
- severe Balance problems
- mild Elevated blood pressure
- mild Emotional lability
- moderate Bowel problems
- mild Anxious mood
- mild Acid reflux
- See more
papaw perry updated hisyour symptoms for Jan 2, 2012 • Jan 02, 2012
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3 stars
papaw perry earned a star! • Jan 02, 2012
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InstantMe

Neutral
papaw perry added an InstantMe for Aug 25, 2011 • Aug 25, 2011 12:30AM

I tire too quick

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InstantMe

Neutral
papaw perry added an InstantMe for Aug 19, 2011 • Aug 19, 2011 3:45PM

not being able to do much due to my ALS disease

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PatientsLikeMe ™

About papaw perry