In October of 2011 I relapsed into a bad "episode" of Fibro Myalgia that continues today. Am in the midst of seeing docs (primary, psych, and physical rehab. specialist) last week and this. Had an MRI done last week. Referred to rehab specialist to further investigation of back problems that may or may not be affecting my left leg which is very, very bad. Hoping.
MRI convinced my doc that I should see a specialist... NO Kidding! So he put me on Neurontin and it seems to be helpful to some degree.
I am still seeing my therapist even though I had planned on quitting by the first week in October. (It's now almost Halloween, 2012.) I suddenly realized I really hadn't talked as much as I needed to about personal intimacy issues with my husband, friends, and my therapist herself.
Soo somehow I have to figure out a way to pay for a few more months..
Fibro episode stopped after a year almost exactly. I know. Very strange. But my left leg was still very bad. Doc looked at MRI results again and said, yes, you have a pinched nerve from compressed lowest three vertebrae. Nothing to be done except to up the dosage of Neurontin which helps somewhat. It did help with incontinence. He asked me first thing and I was so relieved as wetting the bed at 57 was frustrating and mystifying and I never thought it might be related to my back pain, or whatever. He said what happens is that the nerve or nerves that are affected lose the ability to signal to your brain this particular message!
Thank goodness. Now no more trying to hobble to the bathroom with my cane and sometimes not making it in time or just barely making it -- I wore maxi pads to prevent embarrassing situation that might occur when in public.
Dealing with neuralgia is much the same as dealing with Fibro only the pain is mostly concentrated in my left leg... i.e. my knee (!!), my hip and groin muscles which makes walking very painful when that is acting up. I have to use a cane because my knee often just buckles and I yelp like a kid or pup in pain but the cane holds me up. People are very nice in public, like where you might be looking stuff in the same aisle at the market and suddenly it happens and I yelp (can't stop it....it just comes out and I have no control over it. emoticon sad But people often ask if they can help me or ask if I am okay.
So I have taken to using those electric carts on bad days but those things are so crazy. They start up with a lurch sometimes and burst forward with a lot of speed so you have to made sure no one is near you when you start it up and drive carefully trying really hard not to run anyone over! It does have a slow speed by not pressing the lever so much but it's not exactly like having a pedal and steering wheel for control. Still, I am grateful they are there at all.
Exercise is important with neuralgia as it is with Fibro. Too much and you'll regret it and too little and you'll regret it. What's too much or too little is often hard to figure out. It changes daily and weekly. That can get old and I have to watch for mood changes and take care of making sure a funk doesn't turn into something more. For me, that means, connecting with a friend either on the phone or in person. Or, going to youtube or wimp.com or the scores of other websites friends share on FB. Humor is my best friend and I try and keep it close by at all times.