Dear 'Dorothy', sad to see you have the same diagnosis. It's a real bitch at times but I manage to do the best I can. Somedays good, some very good, some, dreadful emoticon smile Like life itself. A journey. A challenge. I have lived with fear aka terror all my life, fear of abandonment. I used to believe that was by others emoticon smile Today, I believe I abandoned myself! I stopped believing aka trusting my self. An interesting epiphany but when all is said and done my perfectionist, competitive streak has helped balance this. I have walked with and through my fear with the guiding hand of guardian angels aka God, my Higher Power. I haven't always recognized it but, on reflection, I can now see how it has inspired and challenged me. Today I can walk, with poles and my rollator. I have a collection emoticon smile of wheelchairs but have yet to find the right one for my adventurous aspirations. My muscles have atrophied, especially my legs, arms and hands. My biggest single issue however, is with breathing. I am on a ViPap machine at night and sleep and dream like a child, I love it. However, during the day I can crash, my energy guts me when it disappears. I am rewriting this today as I just had an energy crash.
It can have me totally at it's mercy. Then I will sit and all I can do is junk out on my computer. My mind works just fine, my memory has never been better. Weird, sort of emoticon smile Sort of a compensation. I take a small variety of natural supplements but rely on healthy home grown, home cooked food and this appears to keep my immune system strong. Eating is becoming an issue. Today I depend on Ensure emoticon smile I have enjoyed great food, wine, travel and a career in film all round the planet and so this has pulled me up short. However, the good news is that it has me focussed on my three loves of film | fotography | filosophy.
I love blogging and there is a link . . . kiwicafe.com
I hope this has helped you, I will change it as I change emoticon smile and am! 14 March 2013