1. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS
  2. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Baclofen from

    • Perceived effectiveness for Multiple Sclerosis: Moderate
    • Side Effects: Mild
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 30 mg Daily
    • Advice & Tips: I was on Baclofen for a year and a half. I didn't think it was working and I wanted to started eliminating some of the prescriptions I'm on so over a month, i weaned myself off of it. Within 3 days, horrendous lag and calf cramps started, severe enough to wake me up in the middle of the night. I tried tonic water, increased my stretching - all to no avail. At my next neurologist's appointment, I got a new prescription and within 2 days the cramps were reduced to manageable.
    • Cost: < $25 monthly
    I was on Baclofen for a year and a half. I didn't think it was working and I wanted to started eliminating some of the prescriptions I'm on so over a month, i weaned myself off of it. Within 3 days, horrendous lag and calf cramps started, severe enough to wake me up in the middle of the night. I tried tonic water, increased my stretching - all to no avail. At my next neurologist's appointment, I got a new prescription and within 2 days the cramps were reduced to manageable.
  3. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  4. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the MSRS survey

    • MSRS: 57
    • Moderate disability that requires some help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Mild disability but not requiring help from others Speech
    • Mild disability but not requiring help from others Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation

    Vertigo impacts my daily activities significantly.

  5. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the QOL survey

  6. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 shared details about Natural Progesterone Cream

    Stopped
  7. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Natural Progesterone Cream from

    • Perceived effectiveness for Menopause: None
    • Side Effects: None
    • Adherence: Never
    • Burden: Not at all
    • Dosage: 1 other Daily
  8. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated the condition Menopause

    • First symptom: ?
    • Diagnosis: ?
  9. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS
  10. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 added a treatment evaluation for Estriol topical from

    • Perceived effectiveness for Hormone replacement: None
    • Side Effects: None
    • Adherence: Usually
    • Burden: Not at all
    • Dosage: 8 mg Daily
  11. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 shared details about Baclofen

    Dosage30 mg daily (was 10 mg daily until )
  12. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterBlurry vision
    WorseDifficulty sleeping through night, Excessive daytime sleepiness (somnolence), Fatigue, Insomnia, Sexual dysfunction, Vertigo
  13. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterMS hug (tight chest or torso), Emotional lability, Difficulty sleeping through night, Insomnia
    NewBlurry vision
  14. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the QOL survey

  15. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 became a 3 star data donor! star earnedstar earnedstar earned

  16. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her weight

  17. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms

    BetterDouble vision (diplopia), Excessive daytime sleepiness (somnolence)
    WorseMS hug (tight chest or torso), Emotional lability, Anxious mood, Difficulty sleeping through night, Mood swings, Depressed mood
    NewElevated blood pressure, Menopause
  18. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 updated her symptoms for

    NewVertigo
  19. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 had a moderate relapse

    Date
    -
  20. 11729 thumb
    nvpioneer1950
    Sex: F
    Data Quality: 1 star
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    nvpioneer1950 completed the MSRS survey

    • MSRS: 35
    • Mild disability but not requiring help from others Cognition
    • Mild disability but not requiring help from others Vision
    • No symptoms or disability in the specific area Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Aware of symptoms but no functional disability Walking
    • Mild disability but not requiring help from others Sensation
  21. Show more